Start-up guide for bladder cancer patient groups – January 2025 update

Setting up a bladder cancer patient group is a journey with many steps. Knowing where to start can be overwhelming, but this updated guide is here to help. Whether you’re just starting or looking to expand your group, our guide offers comprehensive advice, tools, and shared experiences from established organizations worldwide.

Here’s what’s new in this version:

• Fresh case studies showcasing innovative approaches in patient advocacy.
• Additional resources, including templates for campaigns and best practices for engagement.
• Updated facts and figures to reflect the latest global trends in bladder cancer care.

How this guide can support you

Through collaboration with our global members, we’ve gathered valuable lessons and practical tools to support your efforts. Our mission is to foster the growth of bladder cancer patient groups in every country and create a united, informed global community.

This updated guide will help you:

• Establish and strengthen bladder cancer patient groups globally.
• Access pre-made resources and templates for effective advocacy.
• Learn from best practices and inspirational case studies.
• Enhance community engagement and grow your support network.

Moving forward together

We envision a future where every country has a national bladder cancer organization, providing robust support for patients and advocating for improved care. This guide is a stepping stone toward that vision.

Bladder cancer impacts thousands of people globally, and patient groups play a pivotal role in raising awareness, supporting individuals, and driving positive change. Join us on this mission – your work makes a difference.

For more information, visit worldbladdercancer.org or reach out to us at info@worldbladdercancer.org.