Now available in Arabic: Start-up guide for bladder cancer groups

Today, we are thrilled to launch our Arabic edition of the Start-up guide for bladder cancer patient groups, which is an important step in our outreach and community plans for Middle East and Africa region countries.

Bladder cancer patient groups across the globe, small and large, have an important role to play in improving the situation for patients and their families. It is our vision to see a bladder cancer patient group in every country, and today we are proud to launch our Know the basis: A start-up guide for bladder cancer patient groups in Arabic.

The launch of the guide marks our first step towards fostering a community of people affected by bladder cancer in Arabic speaking countries. Bladder cancer prevalence in the region is one of the highest in the world, yet often underrepresented, lacking patient-led bladder cancer groups and peer support networks.

There is a crucial need to provide support and encourage bladder cancer patients, caregivers, families and advocates to join together to improve support, information and care for people affected by bladder cancer in their communities. Strong patient groups or networks can support and ensure the best possible outcome for the patient community in the region. We invite everyone who is ready to step-up to get in touch with the World Bladder Cancer Patient Coalition so we can support you on this journey.

There are so many things to consider when establishing a bladder cancer patient group, and it can be difficult to know where to start. Recognising this, this guide is there for anyone with ambitions to start a bladder cancer patient group in their country.

WBCPC members have considered their own experiences in starting bladder cancer groups, and have combined their collective knowledge in this guide.

The start-up guide aims to:

• Promote the establishment of bladder cancer patient groups in different countries;
• Provide pre-made resources and share best-practice examples for getting started;
• Inform, support and create unity among bladder cancer patient groups;
• Grow the global community of bladder cancer patient groups.

This resource is now available in English, Spanish, French, Portuguese and Arabic and we will continue translations and adaptations of the guide to more regions and countries across the world.

WBCPC sincerely hopes that this resource will benefit many and that it helps encourage others to create and grow bladder cancer patient organisations that support people affected by bladder cancer.

If you would like to get in touch with us, email us at info@worldbladdercancer.org or message us on one of our social media channels.

To download a digital copy of the guide, see below.