Real bladder cancer patient stories illustrate their journey

Bladder Cancer is the 10^th most commonly diagnosed cancer in the world with 570,000 people diagnosed each year. Around the world, the 1.7 million people living with the condition have their own journeys and personal bladder cancer stories to share.

This year the World Bladder Cancer Patient Coalition (WBCPC) wants to spark conversations that raise awareness about the disease by highlighting the symptoms of bladder cancer and overcoming any barriers to seeking medical advice during Bladder Cancer Awareness Month. Early diagnosis and seeking medical advice and care without delay can increase the long-term survival. If caught in its early stages – the 5-year survival rate for bladder cancer can be up to 90%.

Below we are honoured to bring to you two real patient stories where they share their different personal journeys. These stories are a powerful reminder of the impact of bladder cancer. Bladder cancer patient stories also help raise awareness of bladder cancer and highlight the urgent need for new treatments and research, improved care and support for those living with bladder cancer.

Bladder cancer stories

Amy (Female) lives in Senegal and was diagnosed in 2022 at the age of 50.

I went to see a gastroenterologist for chronic constipation and by doing a sonogram that’s how he saw my tumour in the bladder. My urologist gave me the results of a cancer phase T1. It was a shock to me and my family. I didn’t have any symptoms that made me think of bladder cancer. The only symptom was incontinence to hold before rushing to the bathroom, for a little moment and it kept me asking questions about why but the only thing I could think was menopause.

What advice would you give to others who may be newly diagnosed with bladder cancer?

I would ask them to keep up their faith and have a positive mindset. To seek help and resources. Since my diagnosis, I only research bladder cancer and how to help myself heal from it. It’s good to communicate about it and get awareness on how to heal and help others heal.

Rich (male) lives in Australia and was diagnosed in 2022 at the age of 50.

Went to the doctor and mentioned some episodes of blood in my urine after heavy exercise which I had out down to Runners Bladder. Urine Sample followed by CT scan followed by TURBT and biopsy results show T1 tumour. I am starting a 6-week course of BCG starting in 6 weeks’ time.

I experienced blood in my urine – kidded myself that it was Runners Bladder. I had an urgency to pee and put it down to getting older and the fact I drink lots of water.

What advice would you give to others who may be newly diagnosed with bladder cancer?

Do lots of research, ask lots of questions, keep positive attitude and don’t be afraid to share your experiences with others. If I can help one other person catch it early by sharing my story then I will have made a positive impact.

Read more bladder cancer patient stories from around the world

Are you or your loved one affected by bladder cancer? Your stories can help others facing a bladder cancer diagnosis and help bring awareness to the disease. Please share your journey and fill in this form. 

If you are looking to learn more about bladder cancer on our bladder cancer information pages or contact with our member organisations closest to you.

If you have any questions please get in touch with us at info@worldbladdercancer.org