Understanding medical terms in bladder cancer: a new factsheet to help you navigate the language of care

Hearing the words “you have bladder cancer” can be overwhelming. Very quickly, patients and families are introduced to a stream of unfamiliar medical language. Appointments can feel rushed, terminology can be technical and it is not always easy to stop and ask what something means.

To support people at this moment, we are launching “Understanding Medical Terms in Bladder Cancer” a new resource in the WBCPC Factsheet Series.

This factsheet was created to make the vocabulary of bladder cancer clearer and less intimidating. It gathers the words patients most commonly hear across diagnosis, treatment and follow-up and translates them into plain, easy-to-read explanations.

Readers will find definitions for terms linked to tests, procedures and therapies, such as biopsy, cystoscopy, chemotherapy and immunotherapy. The resource also explains different ways urine can be diverted after bladder removal, what clinicians mean by grade or recurrence and why certain scans may be needed. In addition, it introduces the healthcare professionals patients might meet along the way, helping clarify who is responsible for each aspect of care.

The aim is simple: when people understand the language being used, they are better equipped to take part in decisions, prepare questions and express what matters to them. Having time to read information calmly outside the pressure of a consultation can make discussions with medical teams more productive and less stressful.

The factsheet also encourages patients and carers to write down new words, bring the guide to appointments, and return to it whenever new information arises. It is designed to be a companion throughout the journey, not just at diagnosis.

This factsheet is intended for patients, carers, patient organisations and healthcare professionals. It can support one-to-one conversations, group education or awareness activities in the community.

The factsheet is currently available in English, with additional languages planned.

For more information or to explore the full WBCPC Factsheet Series, please visit our website.

Any questions? Contact us at: info@worldbladdercancer.org