Inspiring initiatives from our global community

On Advocates Day of the World Bladder Cancer Patient Forum 2025 in Brussels, Belgium members from around the world came together for the session “Inspiring awareness-raising initiatives from our global community.” The discussion highlighted how local efforts can drive global impact, advancing early diagnosis and patient empowerment.

• Angela Pelletier from Bladder Cancer Canada presented the organisation’s hematuria brochure, a clear and accessible resource designed to help patients and clinicians recognise the importance of blood in the urine, the most common symptom of bladder cancer. Distributed to urology clinics across the country, the brochure encourages early action and ensures symptoms are not overlooked. Adapted from an initiative by BEAT Bladder Cancer Australia, it shows how shared resources can save lives across borders.
• Sarah Coffey Degrange from Cancer Vessie France showcased its strong collaboration with the French Urology Association (AFU), illustrating how patient advocates and clinicians can work together to reach wider audiences. Through press conferences, educational videos, and social media campaigns, they have simplified complex medical information and promoted open dialogue between patients and healthcare professionals. Their joint work also includes updating patient information leaflets and supporting national clinical studies.
• Representing Australia, Christine la Rose from BEAT Bladder Cancer Australia presented the organisation’s nurse education programmes, developed to provide healthcare professionals with accessible, up-to-date bladder cancer information. The online modules and interactive sessions, available free of charge, help nurses better understand symptoms, diagnosis, and treatment, ultimately improving patient care across both urban and rural areas.
• From Italy, Alessandro Boni from Associazione Palinuro shared the success of the award-winning campaign Stop at the Red Light, which urges people to seek medical attention when noticing blood in the urine. Combining storytelling and public engagement, the campaign has reached millions across Italy through national media and film festivals. It continues each May with awareness walks in major cities, uniting patients, clinicians, and volunteers to promote prevention and early diagnosis.

The session showcased the creativity and commitment of the bladder cancer patient community worldwide. From printed materials and nurse education to film campaigns and clinical partnerships, these initiatives demonstrate the power of collaboration in raising awareness and improving outcomes for people affected by bladder cancer.