31 May 2020 .Brussels , Belgium
Building Community, EVENTS

A toolkit is launched today to support national bladder cancer patient groups

Bladder cancer groups across the globe, small and large, have an important role to play in improving the situation for patients and their families. It is WBCPC’s vision to establish a bladder cancer patient group in every country. There is still a long way to go, but strides have been made in the right direction.

There are so many things to consider when establishing a bladder cancer patient group, and it can be difficult to know where to start. Recognising this, WBCPC developed a Start-up guide for bladder cancer patient groups for anyone with ambitions to start a bladder cancer patient group in their country.

WBCPC members have considered their own experiences in starting bladder cancer groups, and have combined their collective knowledge in this guide.

The start-up guide aims to:

  • Promote the establishment of bladder cancer patient groups in different countries;
  • Provide pre-made resources and share best-practice examples for getting started;
  • Inform, support and create unity among bladder cancer patient groups;
  • Grow the global community of bladder cancer patient groups.

«One of the reasons that Andrew Winterbottom helped to create World Bladder Cancer Patient Coalition was to help patients in other countries set up their own patient organisation. He would be so proud to see this toolkit launched today.

Lydia Makaaroff, Vice-President, World Bladder Cancer Patient Coalition

This resource is available in English to start. The next step will be to translate it into more languages.

WBCPC sincerely hopes that this resource will benefit many, and that it helps encourage others to create and grow bladder cancer patient organisations that support people affected by bladder cancer.

To download a digital copy of the guide: “Know the basics: A start-up guide for bladder cancer patient groups” see below.


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