Facing bladder cancer: Oscar’s story from Colombia

Bladder cancer is the 9th most commonly diagnosed cancer worldwide, affecting over 610,000 people each year. Today, 1.9 million people are living with the condition, each carrying their own unique journey and story.

The World Bladder Cancer Patient Coalition (WBCPC) is committed to raising awareness about bladder cancer symptoms and encouraging people to seek medical advice early. When caught in its early stages, the 5-year survival rate for bladder cancer can be as high as 90%.

In line with our mission to give a voice to those affected by bladder cancer, we want to share Oscar’s powerful story. His journey shows the challenges and strength needed to face bladder cancer, offering hope and guidance to those experiencing similar struggles.

Tell us about the symptoms you experienced and how you dealt with them.

The symptoms started with persistent cystitis, trouble urinating, and needing to go to the bathroom more than six times at night. I felt like I couldn’t fully empty my bladder. At first, there was light bleeding, but it became heavy and dark over time.

I went to see a urologist who thought it was a urinary tract infection. He did tests to check my prostate and prescribed medication to help with urination. I saw three different urologists, and they all thought it was a prostate issue. Not one of them considered it could be a problem with my bladder.

After months of no improvement, I finally had a CT scan, urine cytology, and cystoscopy. That’s when I was diagnosed with bladder cancer. It took nearly seven months to get an answer.

How did you find out you had bladder cancer?

I received the test results in Madrid, Spain, where I’ve lived for many years. I opened the envelope at a bus stop. I didn’t cry straight away, but I immediately knew my life would change completely. Seeing the word “cancer” felt like my world was falling apart. For the first time, I faced the possibility of death.

It took me a few hours to process the news. I started getting my affairs in order because I genuinely believed I was going to die. I felt like my time on this earth was running out.

What were your feelings when you got the diagnosis?

I was devastated. It changed everything in my life. Just seeing the word “carcinoma” felt like a tombstone was placed on my head. It was overwhelming. I had to make quick decisions, and that’s exactly what I did. I started to prepare for the worst.

Who was the first person you told about your bladder cancer diagnosis?

The first person I told was my wife. She was in Colombia at the time. One of the hardest parts of this journey was going through it alone. I faced my first surgery and initial treatments without her. She came later, but those first moments were incredibly tough.

What changes did you make in your life after the diagnosis?

I started believing in people again. I let go of anger and resentment. I chose to live each day with joy and hope, expecting the best in every situation.

I changed my eating habits, stopped eating processed foods, and gave up sugary drinks. I started exercising more. I forgave people who had hurt me because I realised that holding on to anger only hurt me more. I became closer to my family and my true friends.

What was your experience with bladder cancer treatment? How long did it last? Did you experience side effects?

I started with intravesical chemotherapy right after my first tumour removal surgery. Then I went through eight BCG instillations. Having a catheter inserted through the urethra each time was very uncomfortable, but I got used to it.

The side effects were tough: severe burning when urinating, cystitis, bleeding, urinary incontinence, and fatigue. I also had a second surgery to check my left kidney, and thankfully, it was fine.

After that, I had four more BCG treatments. The side effects became more intense each time, especially the incontinence. But it was temporary, and I learned to manage it. The entire treatment process lasted seven months, with breaks between each phase.

What advice would you give to others who may be newly diagnosed with bladder cancer?

Stay calm. It’s normal to feel scared, frustrated, and anxious, but keeping a clear head can make all the difference. If you notice any symptoms, no matter how small, see a doctor straight away. Don’t ignore the signs.

Don’t smoke – it’s the worst thing you can do for your bladder. You need to be strong, really strong. Bladder cancer is tough, but you can fight it and come out on the other side.

Did you reach out to other bladder cancer patients or join any support groups?

Yes, I connected with other bladder cancer patients and became friends with Laurent and David from CANVES in Spain. They helped me connect with people who understood what I was going through.

I also started Fundación Proyecto Cáncer in Colombia. Our main goal is to share the stories of people who have battled cancer, not just bladder cancer. We want to raise awareness about cancer and help others by building support networks.

Read more bladder cancer patient stories from around the world

Are you or your loved one affected by bladder cancer? Your stories can help others facing a bladder cancer diagnosis and help bring awareness to the disease. Please share your journey and fill in this form. 

If you are looking to learn more about bladder cancer on our bladder cancer information pages or contact with our member organisations closest to you.

If you have any questions please get in touch with us at info@worldbladdercancer.org