Building Community

Fostering a global community of bladder cancer patient advocates

Bladder cancer patient groups, small and large, have an important role to play in improving the situation for patients and their families. It is our vision to establish a bladder cancer patient group in every country, and we are here to offer support every step of the way.

Our community of patient groups is growing – uniting the vision, experiences and goals of existing bladder cancer patient groups to support emerging ones and to ensure the best possible outcomes for patients around the world

The importance of national bladder cancer patient groups

We want to make sure that national bladder cancer patient organisations are strong enough to effectively support people affected by bladder cancer in each country, to elevate awareness and advocate for better diagnosis, treatment and care. Our network holds a wealth of experience in this area, and we are here to provide guidance and support to aid the work of national groups and individuals.

As a first step, we’ve created this Start-up guide for new or fledging bladder cancer patient groups, which aims to provide support and guidance for anyone wishing to establish a bladder cancer patient group in their country. The guide was built together with our members and contains advice, information and tips, based on our experience setting up national patient organisations.

Furthermore, our annual meeting is the only global gathering for the bladder cancer community and serves as a platform for exchange of knowledge and information, collaboration and development of new innovative ideas.

Our vision is to have a bladder cancer patient organisation established in each country, and that they are fully able to support people affected by bladder cancer. We’re here to help grow, connect and support these groups on their journey.
Dr Lydia Makaroff

President of the World Bladder Cancer Patient Coalition; Chief Executive of Fight Bladder Cancer UK

Resources

Start-up guide for bladder cancer groups Download

Other focus areas

Related news & events

Organising an annual bladder cancer walk in Canada

Ken Bagshaw, Founding President of the World Bladder Cancer Patient Coalition and Board Member of Bladder Cancer Canada, shares the initiative of an annual country-wide awareness-raising walk for bladder cancer patients in Canada.

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Real bladder cancer patient stories illustrate their journey

Patients, survivors and caregivers share their personal bladder cancer journeys to highlight the impact of bladder cancer and the need for greater awareness.

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Creation of a poster to raise awareness about bladder cancer signs and symptoms in France

Lori Cirefice Board of Directors for the World Bladder Cancer Patient Coalition, and Patient Coalition Delegate with Cancer Vessie France – Les Zuros shares the development of an awareness poster about the sign and symptoms of bladder cancer:

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