Building Community

Fostering a global community of bladder cancer patient advocates

Bladder cancer patient groups, small and large, have an important role to play in improving the situation for patients and their families. It is our vision to establish a bladder cancer patient group in every country, and we are here to offer support every step of the way.

Our community of patient groups is growing – uniting the vision, experiences and goals of existing bladder cancer patient groups to support emerging ones and to ensure the best possible outcomes for patients around the world

The importance of national bladder cancer patient groups

We want to make sure that national bladder cancer patient organisations are strong enough to effectively support people affected by bladder cancer in each country, to elevate awareness and advocate for better diagnosis, treatment and care. Our network holds a wealth of experience in this area, and we are here to provide guidance and support to aid the work of national groups and individuals.

As a first step, we’ve created this Start-up guide for new or fledging bladder cancer patient groups, which aims to provide support and guidance for anyone wishing to establish a bladder cancer patient group in their country. The guide was built together with our members and contains advice, information and tips, based on our experience setting up national patient organisations.

Furthermore, our annual meeting is the only global gathering for the bladder cancer community and serves as a platform for exchange of knowledge and information, collaboration and development of new innovative ideas.

Our vision is to have a bladder cancer patient organisation established in each country, and that they are fully able to support people affected by bladder cancer. We’re here to help grow, connect and support these groups on their journey.
Dr Lydia Makaroff

President of the World Bladder Cancer Patient Coalition; Chief Executive of Fight Bladder Cancer UK

Resources

Start-up guide for bladder cancer groups Download

Other focus areas

Related news & events

Now available in Portuguese: Start-up guide for bladder cancer groups

The latest edition of the Start-up guide launches Portuguese, in addition to English, French and Spanish language versions already available.

Learn more

Dr Lydia Makaroff elected as President of the World Bladder Cancer Patient Coalition

We are delighted to announce the appointment of Dr Lydia Makaroff as the new President of the organisation.

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The SIU and WBCPC enter formal agreement to advance bladder cancer patient care

WBCPC and SIU enter into a formal two-year partnership with the aim to improve the quality of bladder cancer best practices and standards of care worldwide.

Learn more