We are delighted to welcome the Swedish patient organisation Blåscancerförbundet or The Swedish Bladder Cancer Society in English to our Coalition. The organisation becomes the 14th member organisation of the World Bladder Cancer Patient Coalition.
The Swedish Blåscancerförbundet was created in June 2020 and aims to prevent, combat and mitigate the effects of bladder cancer as well as to improve care and the quality of life for people affected by bladder cancer.
The World Bladder Cancer Patient Coalition team attended the 42nd Annual SIU Congress – a leading global event organized by Société Internationale d’Urologie convening urologists worldwide. Our team included Dr Lydia Makaroff, President, Ken Bagshaw, Founding President and Alex Filicevas, Executive Director. This event marks the second-time participation for WBCPC at the SIU Congress.
We hosted a WBCPC Booth in the exhibit hall, where we invited urologists to learn more about the World Bladder Cancer Patient Coalition and our member organisations.
Our international community met in Paris and virtually for the second World Bladder Cancer Patient Forum. We had the chance to hear from Sarah Collen, EU Policy Manager at the European Association of Urology,discussing the importance of building partnerships at both European and International levels and how policy initiatives such as Europe’s Beating Cancer Plan, Horizon Europe and EU cancer mission are a call to action.
The second World Bladder Cancer Patient Forum brought together our bladder cancer community in Paris and virtually. This year’s Forum was a milestone event for our international community. Both because we got to get together for the first time in person and as we shared advance insights from our first bladder cancer patient and caregiver survey.
Dr Ignacio Durán, medical oncologist and Coordinator of the Genitourinary Oncology Programme at the Medical Oncology Department of the Hospital Universitario Marques de Valdecilla,
Alex Filicevas, Executive Director of the World Bladder Cancer Patient Coalition, joined a panel discussion at The Economist’s 8th Annual World Cancer Series: Europe, which took place in person on November 8 – 9, 2022, in Brussels, Belgium.
The 8th World Cancer Series: Europe 2022 focused on ”innovation, equity and excellence”. It explored different strategies to accelerate innovation, reduce inequities across cancer control in Europe, and what could to done to build towards universally excellent cancer control and cancer outcomes across the continent.
Dr Stephanie Demkiw, co-founder of Bladder Cancer Awareness Australia, co-developed guidelines from a general practice perspective about how to treat haematuria with some of Australia’s top urologists specializing in bladder cancer care.
This helpful resource summarises the aetiology, investigation and management of haematuria in the primary care setting, with a focus on urological assessment and outcomes.
The presence of bladder in the urine may be a singular symptom signalling underlying urological pathology,
This October edition of the World Bladder Cancer Patient Coalition newsletter features the latest news from the bladder cancer community around the world. In particular, we focus on the launch of the Turkish edition of the Start-up Guide for bladder cancer patient groups, the World Bladder Cancer Patient Forum recording, our annual report 2021 and BEAT Bladder Cancer Australia joining our coalition.
Other topics featured in this edition of our newsletter:
You can explore the October edition here
If you haven’t yet,
The World Bladder Cancer Patient Forum 2022 hosted action-oriented conversations addressing the most challenging issues facing bladder cancer patients. It also featured presentations from our members on their projects that have positively impacted people affected by bladder cancer.
If you have missed the event and/or would like to revisit the discussions, we invite you to watch the recording on our WBCPC Youtube channel.
Watch this space as we publish the World Bladder Cancer Patient Forum 2022 Summary report soon.
The World Bladder Cancer Patient Coalition has now published its Annual Report 2021 showcasing the activities and impact of the organisation throughout the year. 2021 was our third year of existence, and we now unite 12 organisations in 9 countries. We get inspired daily by seeing our member organisations’ commitment and drive to support people affected by bladder cancer in their countries.
In 2021 we raised awareness and continued fostering an international bladder cancer community by:
We are thrilled to welcome the latest member organisation – an Australian patient group, BEAT Bladder Cancer Australia, to the World Bladder Cancer Patient Coalition.
Established in Sydney, New South Wales, BEAT works across Australia and its mission is:
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
