The World Bladder Cancer Patient Coalition joined for the first time the World Cancer Congress 2022. Organised in Geneva, Switzerland, by the Union for International Cancer Control (UICC), the Congress welcomed 2000+ participants from over 120 countries for the first time since 2018.
The WBCPC delegation included President Dr Lydia Makaroff and Executive Director Alex Filicevas, focusing on connecting with patient advocates, civil society groups and cancer control leaders from around the world.
Bladder Cancer Awareness Month (BCAM) is recognized each year in May. Explore our latest campaign report, reflecting on our activities in 2022.
Currently, 1.7 million people are living with bladder cancer around the world. Each year, over 570,000 people are diagnosed with bladder cancer. Yet, for many, it is the first time they hear about bladder cancer. May is an important moment we unite the international bladder cancer patient community and shine a spotlight on this underrepresented disease.
English
Today marks the launch of the Turkish edition of the Start-up guide for bladder cancer patient groups. It is an important step in our outreach and community plans for greater support and information for people affected by bladder cancer in Türkiye.
Bladder cancer patient groups across the globe, small and large, have an important role in improving the situation for patients and their families. Our long-term view is to see a bladder cancer patient group in every country.
This September edition of the World Bladder Cancer Patient Coalition newsletter features the latest news from the bladder cancer community around the world. In particular, we focus on our second World Bladder Cancer Patient Forum that took place in Paris, the ESMO 2022 congress and the Urology Week.
Other topics featured in this edition of our newsletter:
You can explore the September edition here
If you haven’t yet,
Urology week is a European initiative run by the European Association of Urology (EAU). The Urology week aims to raise awareness of the importance of early diagnosis by taking blood in urine seriously, as this is often the first indicator of bladder cancer.
Worldwide, over 570,000 people are diagnosed with bladder cancer. In Europe, the disease affects around 200,000 people each year, making it the fifth most commonly diagnosed cancer.
Europe has some of the highest incidence rates of bladder cancer worldwide.
The second World Bladder Cancer Patient Forum brought together our community in Paris and virtually. This year’s Forum was a milestone event for our international community. Both because we got to get together for the first time in person and as we shared advance insights from our first bladder cancer patient and caregiver survey.
This year’s theme, ‘Taking bladder cancer patients’ voice forward’, was a stepping stone for action. The theme recognises the need for international multi-stakeholder collaboration to achieve common goal of improving the lives of people affected by bladder cancer no matter where they live in the world.
We have launched a focused infographic in English – Stigma: The Invisible side of bladder cancer. The new infographic aims to highlight the impact of stigma on people affected by bladder cancer based on shared lived experiences from patients and caregivers.
When it comes to stigma, bladder cancer patients reported primarily worrying about disease disadvantage, self-stigma, and external stigma. The infographic features data from 312 patients and caregivers from France, Spain,
The World Bladder Cancer Patient Coalition is delighted to announce that our Executive Director, Alex Filicevas is nominated as candidate for the UICC’s Board of Directors.
The Union for International Cancer Control (UICC) shown years of impactful change around the world in cancer control. Alex Filicevas would be honoured to represent the bladder cancer patient and wider community and serve the UICC on its Board of Directors:
Union for International Cancer Control is dedicated to taking the lead in convening,
Lydia Makaroff, President of the World Bladder Cancer Patient Coalition and Chief Executive Officer of Fight Bladder Cancer UK, highlights the importance of setting up an online support forum for people affected by bladder cancer:
Fight Bladder Cancer UK started from a very personal battle. Andrew, one of our founders, was diagnosed with a Stage 4, G3 bladder cancer in summer 2009. He had been experiencing symptoms for over 18 months but was misdiagnosed with an enlarged prostate.
The European Cancer Summit, organised by the European Cancer Organisation (ECO) brings together leading oncology experts, experienced patient advocates, key opinion leaders, policymakers and politicians to discuss key issues in reducing the burden of cancer, saving, and improving the lives of patients and the public.
This year, the European Cancer Summit 2022 which will take place through November 16-17, 2022 in Brussels, Belgium will focus on the implementation of Europe’s Beating Cancer Plan and the EU Cancer Mission’s ambitions and recommendations,
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
