Ken Bagshaw, the founding President of the World Bladder Cancer Patient Coalition (WBCPC), has stepped down from the organisation’s Board of Directors on February 1, 2023. Ken has played a critical role towards the establishment of WBCPC and has actively contributed to the organisation since its launch in 2019.
Ken Bagshaw, bladder cancer patient and advocate was one of the founding members of the World Bladder Cancer Patient Coalition as a representative of Bladder Cancer Canada.
On the occasion of World Cancer Day on February 4, 2022, the World Bladder Cancer Patient Coalition (WBCPC) is proud to join forces with the international cancer community to raise awareness.
World Cancer Day 2023 marks the second year of the three-year ‘Close the care gap’ campaign centered on the issue of equity. This second year is about uniting individuals and organisations, advocates and policymakers in calling for change and taking action.
In this video, the World Bladder Cancer Patient Coalition team wishes the bladder cancer community a happy and healthy New Year and shares their exciting plans and priorities for 2023.
We highlight many different projects that will take place this year:
The New Year is the best time to turn over a new leaf, try again and find new opportunities to make the coming year the best one yet. Below you will find some suggested New Year’s resolutions just for you to make a positive impact on your community of people affected by bladder cancer.
Start a bladder cancer patient support group
Make a resolution to start a patient and/or carer support group for people affected by bladder cancer and create a safe,
Together with our member organisation in the United Kingdom – Fight Bladder Cancer, we developed a new infographic Stigma: The Invisible side of bladder cancer – When it comes to stigma, bladder cancer patients reported primarily worrying about disease disadvantage, self-stigma, and external stigma. The infographic features data from 312 patients and caregivers of which 69 are from the United Kingdom and have shared their experiences in a survey and qualitative interviews.
The Workgroup of European Cancer Patient Advocacy Networks (WECAN) serves as a platform for cancer patient organisations to collaborate, learn, and align to strengthen European patient advocacy. WECAN now brings together over 20 umbrella cancer patient advocacy organisations active in Europe. The World Bladder Cancer Patient Coalition has been a committed member of WECAN since 2020.
WECAN has recently launched its 2022 Activity Report. In the report, you will learn about WECAN’s achievements last year and the collective efforts of the community to strengthen cancer patient advocacy.
Stigma: The Invisible side of bladder cancer – This infographic aims to highlight the impact of stigma on people affected by bladder cancer based on shared lived experiences from patients and caregivers.
When it comes to stigma, bladder cancer patients reported primarily worrying about disease disadvantage, self-stigma, and external stigma. The infographic, originally published in September 2022, features data from 312 patients and caregivers from France, Spain, Germany, the United Kingdom and the United States of America.
Last October, The World Bladder Cancer Patient Coalition joined for the first time the World Cancer Congress 2022. Organized in Geneva, Switzerland, by the Union for International Cancer Control (UICC), the Congress welcomed 2000+ participants from over 120 countries for the first time since 2018.
WBCPC Executive Director, Alex Filicevas, joined a digital panel discussion titled “Empowering genitourinary cancer patients to become their own best advocates.” Organized by the European Association of Urology and co-developed by WBCPC,
At the World Bladder Cancer Patient Forum, Stephen Head, Senior Director of Patient Partnerships at Astellas Pharma Europe joined the panel discussion on taking bladder cancer patients’ voice forward, bringing an industry perspective to the table.
He discussed the importance of raising our voice as a global community as worldwide, over 570,000 people are diagnosed with bladder cancer and 1.7 million people find themselves living with the condition. He pointed out that there is an urgent need to raise awareness for people who are at risk of bladder cancer,
On December 7, 2022, Alex Filicevas, Executive Director of the World Bladder Cancer Patient Coalition, co-chaired a joint event in the European Parliament on the challenge of urinary problems faced by people living with prostate and bladder cancer.
The event was a collaboration between the European Cancer Organisation, European Association of Urology, European Association of Urology Nurses – EAUN, World Federation of Incontinence and Pelvic Problems,
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
