News & Events Category: Highlights

New Bladder cancer infographic 2022 now available

We have just launched a newly updated easy-to-print infographic showcasing key facts about bladder cancer. The infographic features the latest GLOBOCAN data on bladder cancer impact around the world.

WBCPC bladder cancer infographic is a useful tool for advocacy and awareness. Bladder cancer is the 10thmost commonly diagnosed cancer and yet, its awareness remains low when we looking at patient experiences. Around half or so patients hear about bladder cancer for the very first time at diagnosis.

Organising an annual bladder cancer walk in Canada

Ken Bagshaw, Founding President of the World Bladder Cancer Patient Coalition and Board Member of Bladder Cancer Canada, shares the initiative of an annual country-wide awareness-raising walk for bladder cancer patients in Canada:

Each year at Bladder Cancer Canada (BCC) we organise a country-wide awareness-raising walk for bladder cancer. Awareness walks are widely adopted by patient charities and they serve to bring people associated with the particular disease together; to encourage walkers to raise funds by collecting donations from family,

World Bladder Cancer Patient Coalition welcomes the new term of the Board of Directors

The World Bladder Cancer Patient Coalition is pleased to announce the composition of the newly re-appointed Board of Directors for the period of 2022-2025. The renewal of the Board sees five Directors serve another 3-year term, following their roles on the Board of Directors since 2019.

Our Board of directors brings together a wealth of experience, knowledge and passion for improving the lives of people affected by bladder cancer.

WBCPC Board of Directors (2022-2025):  

  • Dr Lydia Makaroff – President of the World Bladder Cancer Patient Coalition and CEO of Fight Bladder Cancer UK.

Bladder Cancer Special Interest Group: The importance of the patient voice

The World Bladder Cancer Patient Coalition joined the European Association of Urology Nurses Annual Meeting 2022. Alex Filicevas, WBCPC Executive Director, joined the session Bladder Cancer: The Importance of the patient voice, Chaired by Dr Bente Thoft Jensen. The presentations and discussion focused on the importance of a meaningful patient-healthcare professional relationship with the ambition of improving patient outcomes and care experience. Speakers offered different views from their individual professional perspectives, helping to highlight the role of the patient voice in bladder cancer patient care and professional societies such as EAU and EAUN.

Creation of a poster to raise awareness about bladder cancer signs and symptoms in France

Lori Cirefice Board of Directors for the World Bladder Cancer Patient Coalition, and Patient Coalition Delegate with Cancer Vessie France – Les Zuros shares the development of an awareness poster about the sign and symptoms of bladder cancer:

In May 2019, Association Les Zuros developed an awareness poster about the signs and symptoms of bladder cancer, considering the surprising lack of awareness around bladder cancer compared to other common cancers in France.

All.Can Summit 2022 – Taking actions: implementing efficiency in cancer care globally

The World Bladder Cancer Patient Coalition (WBCPC) joined the All.Can Global Summit on June 15 – 16, 2022, sharing patient perspective for a discussion focused on Supporting Healthcare Professionals.

This year’s All.Can Global Summit, opened by WBCPC Executive Director and All.Can President Alex Filicevas, explored concrete ways to overcome inefficiencies in cancer care, by hearing from 26 panellists who provided concrete recommendations for practice changes around four key themes:

  • empowering and partnering with people
  • supporting healthcare professionals
  • implementing a data-driven learning system
  • investing in efficient technologies.

Leven met blaas- of nierkanker joins WBCPC community

We are delighted to welcome the Dutch patient organisation Leven met blaas- of nierkanker (LMBNK) or Living with Bladder and/or Kidney Cancer in English, to the World Bladder Cancer Patient Coalition. A well-established organisation in the Netherlands, LMBNK becomes the 12th member organisation of the World Bladder Cancer Patient Coalition.

LMBNK promotes the interests of bladder cancer and kidney cancer patients and brings people affected by the disease together for peer support,

WBCPC would like to thank you for having shared your embarrassing moments with us!

As we step into June, the May Bladder Cancer Awareness Month is coming to a close, and what a month it was!

We would like to thank each and every one of you who shared your embarrassing affirmation with us and engaged with embarrassing moments of others during Bladder Cancer Awareness Month. We are delighted to have selected 5 winners from around the world randomly this year for our contest. They got the chance to win a “Don’t Go Red” campaign T-shirt and a “Don’t Go Red”