The 3rd World Bladder Cancer Patient Forum 2023 brought together our community in Madrid, Spain, with participants joining online as well. This year’s Forum was a milestone event for our international community as we brought together bladder cancer patient advocates from around the world. It was a day full of important conversations, sharing ideas whilst learning and empowering each other.
This year, we focused on understanding bladder cancer patients’ supportive and complementary needs.
For the second consecutive year, the World Bladder Cancer Patient Coalition was thrilled to offer the Bladder Cancer Awareness Month Grants (BCAM Grant) for 2023. These grants empower patient organisations, support groups and advocacy entities in low and middle-income countries to raise awareness about bladder cancer within their communities.
This year, The Direct Impact Foundation for Youth (DIFY) from Malawi received one of our BCAM Grants. DIFY has made commendable efforts to promote bladder cancer awareness in their local community throughout the month of May.
Every year, the month of May is a significant time for our community. It is when we join forces for the Bladder Cancer Awareness Month (BCAM). Explore our latest campaign report full of highlights of global participation and unique initiatives to raise awareness in local communities.
In 2023, we embarked on a revised mission with the “Feeling Unsure? Get Checked” campaign, part of our continued efforts for Bladder Cancer Awareness Month.
The World Bladder Cancer Patient Coalition team attended the 43rd Annual SIU Congress – a leading global event organised by Société Internationale d’Urologie convening urologists worldwide.
We hosted a WBCPC Booth in the exhibit hall, where we welcomed urologists to learn more about the World Bladder Cancer Patient Coalition and our member organisations. In conversations with visitors from various countries, we learned about local challenges faced by people affected by bladder cancer and local resource needs.
This week, the WBCPC President, Dr Lydia Makaroff, took the stage at the 43rd Congress of the Société Internationale d’Urologie in Istanbul, Türkiye, to present the latest research work from the World Bladder Cancer Patient Coalition.
The poster presents the key findings of the WBCPC Bladder Cancer Patient & Carer Experience Survey – it showcases firsthand insights of patients and carers with their own bladder cancer experience and the importance of awareness raising and peer support.
The World Health Organisation recognises World Mental Health Day on October 10, 2023, every year. This year’s theme, set by the World Federation for Mental Health, is “Mental Health is a universal human right”.
Whilst the COVID-19 pandemic has, and continues to take its toll on our mental health, the ability to reconnect through World Mental Health Day 2023 will provide us with an opportunity to re-kindle our efforts to protect and improve mental health.
The World Bladder Cancer Patient Coalition in collaboration with UroToday launched a four-part video series to discuss the findings from the Global Bladder Cancer Patient and Carer Experience Survey. Chaired by Dr Ashish Kamat, each episode covers different areas of patient pathway with unique reflections from experts who have contributed to the project.
In this first episode of video series organised by Urotoday.com and the World Bladder Cancer Patient Coalition,
This September edition of the World Bladder Cancer Patient Coalition newsletter features the latest news from the bladder cancer community around the world. In particular, we focus on:
The World Bladder Cancer Coalition (WBCPC) published a White Paper on Bladder Cancer together with the European Association of Urology. This policy-oriented document outlines a number of policy recommendations to take advantage of existing legislative opportunities in the European Union and opportunities for policy change in the future. Launched in the European Parliament on September 25th, the White Paper on Bladder Cancer aims to bring greater policy attention to impact of bladder cancer in Europe.
On September 25, together with the European Association of Urology we were delighted to bring together key stakeholders for a policy roundtable hosted by MEP István Ujhelyi marking the launch of the European White Paper on Bladder Cancer.
Bladder cancer is the 5th most common cancer in Europe. Despite having one of the highest lifetime costs of any cancer, the research funding is among the lowest. Lack of bladder cancer awareness drastically hinders early detection,
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
