Experts discuss findings from Global Bladder Cancer Patient & Carer Survey

The World Bladder Cancer Patient Coalition and UroToday partnered for four-part video series, where experts discuss the findings of WBCPC Global Bladder Cancer Patient and Carer Experience survey.

The first of its kind and breath, the WBCPC Global Bladder Cancer Patient and Carer Survey garnered nearly 1,200 responses from 45 countries.

In each episode, Caired by Dr Ashish Kamat, speakers focus on a theme of findings, offering valuable insights into the diagnosis experience,

Recognising carers on International Caregiver Day

On November 26, 2023, International Caregiver Day, we take a moment to recognise and celebrate the invaluable contributions of carers around the world. They play a crucial role in supporting people affected by bladder cancer.

Bladder cancer, affecting millions of people worldwide, being the 10th most commonly diagnosed cancer, places significant physical and emotional strains on patients and their families. Carers, often family members or close friends, become the pillars of strength, offering not only physical assistance but also crucial emotional support throughout the journey.

British Association of Urological Nurses Conference 2023

The British Association of Urological Nurses (BAUN) Annual Conference 2023 took place from 19 to 21 November, in Liverpool, UK. The World Bladder Cancer Patient Coalition (WBCPC) joined the Fight Bladder Cancer (FBC) team at their booth to share with attendees the work being undertaken to raise awareness, support patients, and improve bladder cancer care. 

WBCPC was present to understand first-hand how WBCPC’s UK member, Fight Bladder Cancer, engages with the urological community and those affected by bladder cancer.

Raising bladder cancer awareness in Egypt

For the second consecutive year, the World Bladder Cancer Patient Coalition was thrilled to offer the Bladder Cancer Awareness Month Grants (BCAM Grant) in 2023. The BCAM Grants enable patient organisations, support, or advocacy groups in low and middle-income countries to bring awareness to bladder cancer in their communities.

This year, one of our BCAM grant awardees Mansoura University Safety Society (MUSS) organised activities in Egypt. They have taken inspiring steps to bring bladder cancer awareness to their community in May and beyond.

WBCPC presents at European Cancer Summit 2023

The European Cancer Summit, organised by the European Cancer Organisation (ECO) took place through November 15-16, 2023 in Brussels, Belgium, and brought together leading oncology experts, experienced patient advocates, key opinion leaders, policymakers, and politicians to discuss key issues in reducing the burden of cancer, saving, and improving the lives of patients and the public.

The World Bladder Cancer Patient Coalition Executive Director, Alex Filicevas, joined the engaging panel discussion alongside other young cancer professionals titled “The Next Generation of Cancer Leaders”.  

The World Bladder Cancer Patient Forum 2023 recording is now available!

The World Bladder Cancer Patient Forum 2023 hosted action-oriented conversations focused on understanding the supportive and complementary needs of bladder cancer patients. Building upon the recently published findings of the Bladder Cancer Patient & Carer Survey, we explored practical ways to address these patient needs in real-world practice.

The event featured an engaging session with a lively panel discussion. It also featured presentations from our members on their projects that have positively impacted people affected by bladder cancer.

Associazione PaLiNUro’s 6th Congress

The Associazione PaLiNUro held its 6th Annual Congress on 11 November 2023, in Milan, Italy, which the World Bladder Cancer Patient Coalition (WBCPC) had the opportunity to attend in person. 

The Congress was opened by Edoardo Fiorini, President of Associazione PaLiNUro, who presented the Italian data from WBCPC’s Global Bladder Cancer Patient & Carer Survey. This presentation highlighted how Italy’s quality of bladder cancer care compares with the rest of the world. 

Urge to Act: WBCPC signs Manifesto for policy reform on Continence Health in Europe

WBCPC joined stakeholders for a policy focused EU Continence Health Summit 2023 organised by the European Association of Urology last November 8, 2023, in Brussels, Belgium.

Continence health problems are a major health issue impacting patients and their loved ones, national health systems, the economy, the environment and society. The Continence Health Summit brought stakeholders together to work on a common purpose: Underscore the need for action to improve continence health and to provide policymakers with a policy vision that can drive tangible change.

Cancer in Africa: WBCPC joins the 14th AORTIC Conference

The World Bladder Cancer Patient Coalition joined for the first time the 14th Cancer in Africa conference in Dakar, Senegal to better understand the realities of bladder cancer patient care in the region. Organised by the African Organisation for Research and Training in Cancer (AORTIC), the conference took place during November 2-6, 2023. The Conference brought together multidisciplinary specialists from the global cancer community focused on efforts to reduce the impact of cancer in Africa.

World Bladder Cancer Patient Forum 2023 workshops facilitate ideas and collaborations

The World Bladder Cancer Patient Forum took place in Madrid, Spain on October 19, 2023. It was our annual opportunity to bring our bladder cancer patient organisations, charities and those who are making steps in starting their own bladder cancer patient group in their own community.

The morning kicked off with reflections on the Bladder Cancer Awareness Month of past May. Marie Magenhann Cueto, Communications and Community Engagement Assistant at WBCPC, shared the campaign highlights,