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The World Bladder Cancer Patient Coalition is organizing a policy discussion entitled: “The ‘P’ Word: the challenge of urinary problems in people living with prostate and bladder cancer” together with the European Cancer Organisation, European Association of Urology, European Association of Urology Nurses – EAUN, World Federation of Incontinence and Pelvic Problems, Eurocarers and Europa Uomo.
Dr Stephanie Demkiw, co-founder of Bladder Cancer Awareness Australia, co-developed guidelines from a general practice perspective about how to treat haematuria with some of Australia’s top urologists specializing in bladder cancer care.
This helpful resource summarises the aetiology, investigation and management of haematuria in the primary care setting, with a focus on urological assessment and outcomes.
The presence of bladder in the urine may be a singular symptom signalling underlying urological pathology,
The World Bladder Cancer Patient Coalition is delighted to announce that our Executive Director, Alex Filicevas is nominated as candidate for the UICC’s Board of Directors.
The Union for International Cancer Control (UICC) shown years of impactful change around the world in cancer control. Alex Filicevas would be honoured to represent the bladder cancer patient and wider community and serve the UICC on its Board of Directors:
Union for International Cancer Control is dedicated to taking the lead in convening,
We have just launched a newly updated easy-to-print infographic showcasing key facts about bladder cancer. The infographic features the latest GLOBOCAN data on bladder cancer impact around the world.
WBCPC bladder cancer infographic is a useful tool for advocacy and awareness. Bladder cancer is the 10thmost commonly diagnosed cancer and yet, its awareness remains low when we looking at patient experiences. Around half or so patients hear about bladder cancer for the very first time at diagnosis.
The World Bladder Cancer Patient Coalition is pleased to announce the composition of the newly re-appointed Board of Directors for the period of 2022-2025. The renewal of the Board sees five Directors serve another 3-year term, following their roles on the Board of Directors since 2019.
Our Board of directors brings together a wealth of experience, knowledge and passion for improving the lives of people affected by bladder cancer.
WBCPC Board of Directors (2022-2025):
The World Bladder Cancer Patient Coalition co-developed the Bladder cancer session at the Patient Day of the European Association of Urology Congress 2022. The session was chaired by the WBCPC President, Dr Lydia Makaroff and Dr Eammon Rogers, Chair of the EAU Patient Information Office.
We were delighted to welcome patient advocates and our bladder cancer patient group community to the session. The EAU Patient Day Bladder Cancer session took place in-person for the first time.
The World Bladder Cancer Patient Coalition joined the European Association of Urology Nurses Annual Meeting 2022. Alex Filicevas, WBCPC Executive Director, joined the session Bladder Cancer: The Importance of the patient voice, Chaired by Dr Bente Thoft Jensen. The presentations and discussion focused on the importance of a meaningful patient-healthcare professional relationship with the ambition of improving patient outcomes and care experience. Speakers offered different views from their individual professional perspectives, helping to highlight the role of the patient voice in bladder cancer patient care and professional societies such as EAU and EAUN.
Our members PaliNURo designed the Uro-H-Advisor in Italy, as presented at the World Bladder Cancer Patient Forum last year in September.
The platform guides people in Italy in choosing the most competent, effective, and humane hospital for their bladder cancer treatment. The application transparently showcases an evaluation from other bladder cancer patients themselves, on the quality of care that patients receive at different hospitals and clinics around the country, to support their selection.
The International Agency for Research on Cancer (IARC) has released a new IARC Evidence Summary Brief, titled “Improving Early Detection and Clinical Management of Bladder Cancer”, in which researchers from IARC and partners argue for the validation of a simple and cost-effective urine test that could significantly improve early detection and management of bladder cancer, including among high-risk populations.
Bladder cancer is the 10th most common cancer type worldwide.
Lydia Makaroff, World Bladder Cancer Patient Coalition (WBCPC) President, represented the organisation at the World Health Organization’s Informal consultation with people living with non-communicable diseases (PLWNCDs) and mental health conditions (MHCs) to highlight the importance of including people with lived experiences in co-designing policies, programs, and principles.
The consultation supports the co-creation of the engagement framework and explored the importance of how meaningful engagement of PLWNCDs and MHCs is and can be further implemented at a regional and national level.
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
