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Earlier this month, the World Bladder Cancer Patient Coalition co-signed a joint statement led by EURORDIS and the European Patients’ Forum (EPF), calling for meaningful patient involvement and the protection of voting rights in European Medicines Agency (EMA) committees.
This united action comes at a key moment as EU institutions negotiate the final shape of the new pharmaceutical legislation. The statement highlights the need to preserve and strengthen patient representation,
The First Cancer Mission Fair brought together patient advocates, healthcare professionals, researchers, and policymakers from across Europe to accelerate progress on the EU Cancer Mission and strengthen collaboration. Held in Warsaw, Poland, the event was also the stage for the official launch of the Polish Cancer Mission Hub, hosted under the framework of the ECHoS | Establishing of Cancer Mission Hubs: Networks and Synergies initiative.
The World Bladder Cancer Patient Coalition was proud to join this important gathering and contribute to the conversations that shape cancer policy,
The World Bladder Cancer Patient Coalition (WBCPC) has signed a joint statement led by the BioMed Alliance, calling on the European Commission to safeguard health funding in the upcoming Multiannual Financial Framework (MFF). The statement has been endorsed by a wide coalition of medical societies, patient organisations, and other stakeholders in the health sector.
This collective call to action comes in response to growing concern that EU investment in health may be deprioritised in the next long-term budget,
Trust is one of the most important elements in healthcare and also one of the most fragile. At EAU Congress 2025, the first-ever EAU Patient Plaza Theatre hosted patient-led sessions, which included WBCPC session on Building Trust in the Patient-Doctor Relationship brought together patients, advocates, and clinicians to explore how to strengthen communication and connection in cancer care.
The discussion highlighted that trust isn’t automatic. it must be built through empathy,
The World Bladder Cancer Patient Coalition (WBCPC) has signed the joint letter advocating for the ‘Right to be Forgotten’ for cancer survivors has been sent to European Commissioners Olivér Varhelyi and Maria LuísAlbuquerque. This important initiative seeks to address the financial discrimination faced by cancer survivors across Europe.
Developed with valuable input from the Patient Advisory Committee of the European Cancer Organisation, of which WBCPC is a member, the letter highlights the ongoing challenges cancer survivors encounter when accessing financial services,
Bladder cancer remains one of the most under-recognised cancers, yet early detection is critical to improving patient outcomes. On 30 January 2025, World Bladder Cancer Patient Coalition (WBCPC) Executive Director Alex Filicevas joined the Cancer Prevention Webinar Series, hosted by the University of Doha for Science and Technology and the Qatar Cancer Society, to discuss key risk factors, national guidelines, and the role of patient advocacy and support in improving outcomes for people affected by bladder cancer.
The International Bladder Cancer Group (IBCG), a global network of experts dedicated to advancing bladder cancer research and care, has launched its new Centre for Patient-Centric Care Initiatives. This initiative aims to explore and advance patient-centred approaches in bladder cancer care.
This innovative initiative brings together leading experts, patients, and advocates to develop strategies that empower patients, personalise treatment, and promote holistic care and wellness. Key focus areas will include shared decision-making,
The World Bladder Cancer Patient Coalition marked a new milestone, presenting for the first time at the World Cancer Congress our Global Bladder Cancer Patient & Carer Survey Findings abstract poster. The only global cancer policy event organised every other year by the Union for the International Cancer Control took place on September 17-19, 2024 in Geneva, Switzerland. This marked our first poster at this prestigious event, underscoring our growing commitment and impact in the field of bladder cancer research and advocacy globally.
The New Year is a great time to start fresh and discover new opportunities to make the upcoming year the best one yet. We have some suggested resolutions just for you, aimed at making a positive impact on the community of people affected by bladder cancer. It’s a chance to turn a new leaf and contribute in a meaningful way to people facing bladder cancer today.
Get involved during Bladder Cancer Awareness Month
Start the conversation with your network on the social media of your choice by sharing one of these ready-made posts below.
The World Bladder Cancer Patient Coalition and UroToday partnered for four-part video series, where experts discuss the findings of WBCPC Global Bladder Cancer Patient and Carer Experience survey.
The first of its kind and breath, the WBCPC Global Bladder Cancer Patient and Carer Survey garnered nearly 1,200 responses from 45 countries.
In each episode, Caired by Dr Ashish Kamat, speakers focus on a theme of findings, offering valuable insights into the diagnosis experience,
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
