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This week, the WBCPC President, Dr Lydia Makaroff, took the stage at the 43rd Congress of the Société Internationale d’Urologie in Istanbul, Türkiye, to present the latest research work from the World Bladder Cancer Patient Coalition.
The poster presents the key findings of the WBCPC Bladder Cancer Patient & Carer Experience Survey – it showcases firsthand insights of patients and carers with their own bladder cancer experience and the importance of awareness raising and peer support.
The World Bladder Cancer Coalition (WBCPC) published a White Paper on Bladder Cancer together with the European Association of Urology. This policy-oriented document outlines a number of policy recommendations to take advantage of existing legislative opportunities in the European Union and opportunities for policy change in the future. Launched in the European Parliament on September 25th, the White Paper on Bladder Cancer aims to bring greater policy attention to impact of bladder cancer in Europe.
Today marks an important milestone for our bladder cancer community. We are proud to launch the report of our very first Global Bladder Cancer Patient & Carer Experience Survey. This multi-year and multi-national evidence-generation study covers the entire bladder cancer patient experience – from disease awareness, diagnosis, treatment and care, follow-up, life with and after cancer, and the impact of the COVID-19 pandemic.
Explore some of the highlights below, read the Executive Summary or dive into the full Global Bladder Cancer Patient &
In collaboration with Grupo Español de Pacientes con Cáncer (GEPAC), we developed a new infographic titled “Stigma: The invisible side of bladder cancer”. This infographic highlights the impact of stigma on bladder cancer patients based on data from 312 patients and carers, including 73 from Spain, who shared their experiences through surveys and qualitative interviews
The themes explored in the infographic include:
The research was conducted to gain a deeper understanding of the impact of bladder cancer on patients and carers and to explore the existence,
• Over half (57%) of bladder cancer patients were first diagnosed with another condition
• More than a third (39%) of women with bladder cancer are initially misdiagnosed with Urinary Tract Infections (UTIs)
• Almost one-fifth (18%) of women with bladder cancer symptoms have to visit their GP five times or more before being referred to a specialist
According to a new global survey of bladder cancer patients, more than half (57%) of people with bladder cancer are initially diagnosed with another condition.
We are thrilled to announce that the 2022 Bladder Cancer Awareness Month campaign “Don’t go red. Go to a doctor” was nominated for The PRWeek UK Healthcare & Pharma Comms Awards in the category of Best Public Health Awareness Campaign.
The PRWeek Awards are an opportunity to showcase and celebrate the best campaigns, projects, agencies, in-house teams, and individuals across healthcare and pharmaceutical communications.
Last year, we launched our “Don’t Go Red.
In collaboration with Cancer Vessie France, our member organisation in France, we developed a new infographic titled “Stigma: The Invisible side of bladder cancer”. This infographic highlights the impact of stigma on bladder cancer patients based on data from 312 patients and caregivers, including 38 from France, who shared their experiences through surveys and qualitative interviews
The themes explored in the infographic include:
The research was conducted to gain a deeper understanding of the impact of bladder cancer on patients and caregivers and to explore the existence,
Together with our member organisation in the United Kingdom – Fight Bladder Cancer, we developed a new infographic Stigma: The Invisible side of bladder cancer – When it comes to stigma, bladder cancer patients reported primarily worrying about disease disadvantage, self-stigma, and external stigma. The infographic features data from 312 patients and caregivers of which 69 are from the United Kingdom and have shared their experiences in a survey and qualitative interviews.
The Workgroup of European Cancer Patient Advocacy Networks (WECAN) serves as a platform for cancer patient organisations to collaborate, learn, and align to strengthen European patient advocacy. WECAN now brings together over 20 umbrella cancer patient advocacy organisations active in Europe. The World Bladder Cancer Patient Coalition has been a committed member of WECAN since 2020.
WECAN has recently launched its 2022 Activity Report. In the report, you will learn about WECAN’s achievements last year and the collective efforts of the community to strengthen cancer patient advocacy.
Stigma: The Invisible side of bladder cancer – This infographic aims to highlight the impact of stigma on people affected by bladder cancer based on shared lived experiences from patients and caregivers.
When it comes to stigma, bladder cancer patients reported primarily worrying about disease disadvantage, self-stigma, and external stigma. The infographic, originally published in September 2022, features data from 312 patients and caregivers from France, Spain, Germany, the United Kingdom and the United States of America.
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
