Cancer Vessie France, the WBCPC member organization in France, has joined forces with the French Association of Urology (AFU) to raise bladder cancer awareness in May.
As part of the activities, the organizations have dedicated a full day towards better-informed patients. The Patient Day programme, which took place on May 24 in Paris, focused on helping bladder cancer patients and their loved ones to better understand the bladder cancer care pathway.
The World Bladder Cancer Patient Coalition supports the Rare Disease Day international campaign that sheds light on rare diseases and advocates for health equity for all those with a rare disease.
Since 2008, Rare Disease Day, which takes place on the last day of February, has brought together patients, caregivers, family members, friends, and advocates worldwide. This year’s campaign revolves around working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
EAU23, Europe’s largest Annual Urology Congress, will take place in Milan, Italy on March 10-13, 2023. The European Association of Urology (EAU) provides patient organisations and patient advocates with a stage to voice their goals and objectives at this congress, in addition to breaking scientific updates.
The World Bladder Cancer Patient Coalition President, Dr Lydia Makaroff, and Executive Director, Alex Filicevas will be speaking at the following sessions:
EAU Patient Day: Urological Patient Presentations
Alex Filicevas
This World Cancer Day, the World Bladder Cancer Patient Coalition is proud to join the international cancer community efforts. Jointly, we advocate for greater access to care for marginalised populations and closing the gap in cancer care worldwide.
World Cancer Day takes place every year on February 4 and is the uniting global initiative under which the world comes together to raise the profile of cancer in a positive and inspiring way. Spearheaded by the Union for International Cancer Control (UICC),
On the occasion of World Cancer Day on February 4, 2022, the World Bladder Cancer Patient Coalition (WBCPC) is proud to join forces with the international cancer community to raise awareness.
World Cancer Day 2023 marks the second year of the three-year ‘Close the care gap’ campaign centered on the issue of equity. This second year is about uniting individuals and organisations, advocates and policymakers in calling for change and taking action.
At the World Bladder Cancer Patient Forum, Stephen Head, Senior Director of Patient Partnerships at Astellas Pharma Europe joined the panel discussion on taking bladder cancer patients’ voice forward, bringing an industry perspective to the table.
He discussed the importance of raising our voice as a global community as worldwide, over 570,000 people are diagnosed with bladder cancer and 1.7 million people find themselves living with the condition. He pointed out that there is an urgent need to raise awareness for people who are at risk of bladder cancer,
Our international community met in Paris and virtually for the second World Bladder Cancer Patient Forum. We had the chance to hear from Sarah Collen, EU Policy Manager at the European Association of Urology,discussing the importance of building partnerships at both European and International levels and how policy initiatives such as Europe’s Beating Cancer Plan, Horizon Europe and EU cancer mission are a call to action.
The World Health Organisation recognises World Mental Health Day on the October 10, 2022 every year. This year’s theme, set by the World Federation for Mental Health, is “Make mental health and wellbeing for all a global priority”.
Whilst the COVID-19 pandemic has, and continues to take its toll on our mental health, the ability to reconnect through World Mental Health Day 2022 will provide us with an opportunity to re-kindle our efforts to protect and improve mental health.
Urology week is a European initiative run by the European Association of Urology (EAU). The Urology week aims to raise awareness of the importance of early diagnosis by taking blood in urine seriously, as this is often the first indicator of bladder cancer.
Worldwide, over 570,000 people are diagnosed with bladder cancer. In Europe, the disease affects around 200,000 people each year, making it the fifth most commonly diagnosed cancer.
Europe has some of the highest incidence rates of bladder cancer worldwide.
The World Bladder Cancer Patient Coalition (WBCPC) joined the All.Can Global Summit on June 15 – 16, 2022, sharing patient perspective for a discussion focused on Supporting Healthcare Professionals.
This year’s All.Can Global Summit, opened by WBCPC Executive Director and All.Can President Alex Filicevas, explored concrete ways to overcome inefficiencies in cancer care, by hearing from 26 panellists who provided concrete recommendations for practice changes around four key themes:
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
