Since 2008, Rare Disease Day has united people worldwide to raise awareness of rare diseases and the challenges they bring. Held annually on the last day of February, it highlights conditions that often go unnoticed.
This February 28, the World Bladder Cancer Patient Coalition (WBCPC) is supporting the campaign to improve care, research, and treatment for all rare diseases, including rare types of bladder cancer. Even though these cancers are uncommon,
On the occasion of World Cancer Day on February 4, 2025, the World Bladder Cancer Patient Coalition (WBCPC) is proud to join forces with the international cancer community to raise awareness. This year, under the theme “United by Unique” we invite you to raise awareness of bladder cancer and advocate for equitable, people-centred care for all.
World Cancer Day 2025 is led by the Union for International Cancer Control (UICC),
The session titled “The role of the patient voice in Health Technology Assessment – HTA 101” at the World Bladder Cancer Patient Forum 2024 brought patient experts from our community to explore how this critical process shapes healthcare decision-making. The discussion highlighted the importance of HTA in ensuring that treatments, medical devices, and even public health campaigns deliver value not just in terms of cost but also in their impact on the lives of people affected.
At the World Bladder Cancer Patient Forum 2024, advocates shared powerful insights on enhancing patient support and tackling the unique challenges of bladder cancer care.
Michelle Colero from Bladder Cancer Canada aopened the discussion by sharing her personal connection to bladder cancer and her journey in the non-profit sector. Her organisation provides vital support groups tailored to the unique needs of caregivers and patients, including those with metastatic or muscle-invasive bladder cancer.
At the World Bladder Cancer Patient Forum 2024, a fireside chat titled Current Successes and Future Ambitions for Greater Awareness brought together Lori Cirefice, President of Cancer Vessie France; Lauren Pretorius, CEO of Campaigning for Cancer, South Africa; and Amy Samuel, a bladder cancer patient and advocate from Senegal. The session focused on the current state of bladder cancer awareness and the steps needed to achieve further progress in this area.
The World Bladder Cancer Patient Forum 2024 in Punta Cana brought together advocates, healthcare professionals, and community leaders from around the world to share their unique approaches to raising awareness about bladder cancer. Through presentations from Italy, Canada, France, and countries across Africa, the Forum highlighted the dedication of advocates working to improve lives for people with bladder cancer.
Laura Magenta, representing Italy’s only bladder cancer patient organisation, Associazione PaLiNUro,
On November 26, 2024, the world marks the International Caregiver Day by appreciating the important contributions of carers around the world, especially those supporting people affected by bladder cancer.
Bladder cancer, the 9th most commonly diagnosed cancer globally, affects not only patients but also their families and friends. Carers, often close family members or friends, play an essential role in providing practical assistance and emotional support throughout the cancer journey.
The World Bladder Cancer Patient Coalition (WBCPC) was proud to take part in the Global Cancer Coalitions Network (GCCN) Annual Meeting in Toronto, Canada, on August 28-29, 2024. WBCPC joined GCCN in 2020, with our Executive Director Alex Filicevas currently Co-Chairing the initiative. This annual event brought together leading cancer patient advocacy coalitions from around the world to explore ways to collaborate and share expertise to improve patient outcomes and strengthen advocacy efforts globally.
We are thrilled to announce that the World Bladder Cancer Patient Forum 2024 will take place on October 1-2, in Punta Cana, Dominican Republic! We invite you to Save The Date and hope to see you there in person.
This year we will once again bring the global bladder cancer patient community together for two days of important discussions, learnings, sharing ideas, and networking.
If you have missed last year’s and/or would like to revisit the discussions,
Cancer Vessie France, a member of WBCPC, has again teamed up with the French Association of Urology (AFU) to raise awareness about bladder cancer in May. Attendees, including patients, caregivers, healthcare professionals, and researchers, gathered from across France to deepen their understanding of bladder cancer and its impacts.
This year’s Patient Day took place on 2nd May, during Bladder Cancer Awareness Month 2024. The meeting offered comprehensive information tailored to patients,
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
