October newsletter is out!

This October edition of the World Bladder Cancer Patient Coalition newsletter features the latest news from the bladder cancer community around the world. In particular, we focus on the launch of the Turkish edition of the Start-up Guide for bladder cancer patient groups, the World Bladder Cancer Patient Forum recording, our annual report 2021 and BEAT Bladder Cancer Australia joining our coalition.

Other topics featured in this edition of our newsletter:

  • 8th Annual World Cancer Series: Europe
  • BCAN’s 2023 Walk to End Bladder Cancer
  • Bladder Cancer Canada’s volunteer awards
  • World Cancer Congress 2022
  • Bladder Cancer Awareness Month report 2022
  • ESMO 2022
  • World Mental Health Day 2022

You can explore the October edition here

If you haven’t yet,

The World Bladder Cancer Patient Forum 2022 recording is now available!

The World Bladder Cancer Patient Forum 2022 hosted action-oriented conversations addressing the most challenging issues facing bladder cancer patients. It also featured presentations from our members on their projects that have positively impacted people affected by bladder cancer. 

 If you have missed the event and/or would like to revisit the discussions, we invite you to watch the recording on our WBCPC Youtube channel. 

Watch this space as we publish the World Bladder Cancer Patient Forum 2022 Summary report soon.

Annual report 2021 – World Bladder Cancer Patient Coalition

The World Bladder Cancer Patient Coalition has now published its Annual Report 2021 showcasing the activities and impact of the organisation throughout the year. 2021 was our third year of existence, and we now unite 12 organisations in 9 countries. We get inspired daily by seeing our member organisations’ commitment and drive to support people affected by bladder cancer in their countries.

In 2021 we raised awareness and continued fostering an international bladder cancer community by:

  • Further expanding accessibility of resources for people ready to start a group in their country with the launch of the Start-up guide for bladder cancer patient groups in additional languages – French,

BEAT Bladder Cancer Australia joins our international community

We are thrilled to welcome the latest member organisation –  an Australian patient group, BEAT Bladder Cancer Australia, to the World Bladder Cancer Patient Coalition.

Established in Sydney, New South Wales, BEAT works across Australia and its mission is:

  • To increase community, general practitioner and health professional awareness and education
  • To provide support services to the bladder cancer community
  • To steer and advance bladder cancer research,

WBCPC at World Cancer Congress 2022

The World Bladder Cancer Patient Coalition joined for the first time the World Cancer Congress 2022. Organised in Geneva, Switzerland, by the Union for International Cancer Control (UICC), the Congress welcomed 2000+ participants from over 120 countries for the first time since 2018.

The WBCPC delegation included President Dr Lydia Makaroff and Executive Director Alex Filicevas, focusing on connecting with patient advocates, civil society groups and cancer control leaders from around the world.

Campaign report: Bladder Cancer Awareness Month 2022

Bladder Cancer Awareness Month (BCAM) is recognized each year in May. Explore our latest campaign report, reflecting on our activities in 2022.

Currently, 1.7 million people are living with bladder cancer around the world. Each year, over 570,000 people are diagnosed with bladder cancer. Yet, for many, it is the first time they hear about bladder cancer. May is an important moment we unite the international bladder cancer patient community and shine a spotlight on this underrepresented disease.

Turkish Start-up guide for bladder cancer groups

English

Today marks the launch of the Turkish edition of the Start-up guide for bladder cancer patient groups. It is an important step in our outreach and community plans for greater support and information for people affected by bladder cancer in Türkiye.

Bladder cancer patient groups across the globe, small and large, have an important role in improving the situation for patients and their families. Our long-term view is to see a bladder cancer patient group in every country.

September newsletter is out!

This September edition of the World Bladder Cancer Patient Coalition newsletter features the latest news from the bladder cancer community around the world. In particular, we focus on our second World Bladder Cancer Patient Forum that took place in Paris, the ESMO 2022 congress and the Urology Week.

Other topics featured in this edition of our newsletter:

  • BCAN launch new source to compare bladder cancer treatments
  • Quiz night in aid of bladder cancer patient community in the UK
  • Bladder Cancer Wellness Retreat 2023
  • A new advocacy infographic
  • World Cancer Congress 2022

You can explore the September edition here

If you haven’t yet,

Urology week 2022 – September 26 -30

Urology week is a European initiative run by the European Association of Urology (EAU). The Urology week aims to raise awareness of the importance of early diagnosis by taking blood in urine seriously, as this is often the first indicator of bladder cancer.

Worldwide, over 570,000 people are diagnosed with bladder cancer. In Europe, the disease affects around 200,000 people each year, making it the fifth most commonly diagnosed cancer.

Europe has some of the highest incidence rates of bladder cancer worldwide.

World Bladder Cancer Patient Forum 2022 – Taking bladder cancer patient’s voice forward

The second World Bladder Cancer Patient Forum brought together our community in Paris and virtually. This year’s Forum was a milestone event for our international community. Both because we got to get together for the first time in person and as we shared advance insights from our first bladder cancer patient and caregiver survey.

This year’s theme, ‘Taking bladder cancer patients’ voice forward’, was a stepping stone for action. The theme recognises the need for international multi-stakeholder collaboration to achieve common goal of improving the lives of people affected by bladder cancer no matter where they live in the world.