We have launched a focused infographic in English – Stigma: The Invisible side of bladder cancer. The new infographic aims to highlight the impact of stigma on people affected by bladder cancer based on shared lived experiences from patients and caregivers.
When it comes to stigma, bladder cancer patients reported primarily worrying about disease disadvantage, self-stigma, and external stigma. The infographic features data from 312 patients and caregivers from France, Spain,
The World Bladder Cancer Patient Coalition is delighted to announce that our Executive Director, Alex Filicevas is nominated as candidate for the UICC’s Board of Directors.
The Union for International Cancer Control (UICC) shown years of impactful change around the world in cancer control. Alex Filicevas would be honoured to represent the bladder cancer patient and wider community and serve the UICC on its Board of Directors:
Union for International Cancer Control is dedicated to taking the lead in convening,
Lydia Makaroff, President of the World Bladder Cancer Patient Coalition and Chief Executive Officer of Fight Bladder Cancer UK, highlights the importance of setting up an online support forum for people affected by bladder cancer:
Fight Bladder Cancer UK started from a very personal battle. Andrew, one of our founders, was diagnosed with a Stage 4, G3 bladder cancer in summer 2009. He had been experiencing symptoms for over 18 months but was misdiagnosed with an enlarged prostate.
The European Cancer Summit, organised by the European Cancer Organisation (ECO) brings together leading oncology experts, experienced patient advocates, key opinion leaders, policymakers and politicians to discuss key issues in reducing the burden of cancer, saving, and improving the lives of patients and the public.
This year, the European Cancer Summit 2022 which will take place through November 16-17, 2022 in Brussels, Belgium will focus on the implementation of Europe’s Beating Cancer Plan and the EU Cancer Mission’s ambitions and recommendations,
We have just launched a newly updated easy-to-print infographic showcasing key facts about bladder cancer. The infographic features the latest GLOBOCAN data on bladder cancer impact around the world.
WBCPC bladder cancer infographic is a useful tool for advocacy and awareness. Bladder cancer is the 10thmost commonly diagnosed cancer and yet, its awareness remains low when we looking at patient experiences. Around half or so patients hear about bladder cancer for the very first time at diagnosis.
Ken Bagshaw, Founding President of the World Bladder Cancer Patient Coalition and Board Member of Bladder Cancer Canada, shares the initiative of an annual country-wide awareness-raising walk for bladder cancer patients in Canada:
Each year at Bladder Cancer Canada (BCC) we organise a country-wide awareness-raising walk for bladder cancer. Awareness walks are widely adopted by patient charities and they serve to bring people associated with the particular disease together; to encourage walkers to raise funds by collecting donations from family,
Bladder Cancer is the 10th most commonly diagnosed cancer in the world with 570,000 people diagnosed each year. Around the world, the 1.7 million people living with the condition have their own journeys and personal bladder cancer stories to share.
Below we are honoured to bring to you two real patient stories where they share their different personal journeys. These stories are a powerful reminder of the impact of bladder cancer.
The World Bladder Cancer Patient Coalition is pleased to announce the composition of the newly re-appointed Board of Directors for the period of 2022-2025. The renewal of the Board sees five Directors serve another 3-year term, following their roles on the Board of Directors since 2019.
Our Board of directors brings together a wealth of experience, knowledge and passion for improving the lives of people affected by bladder cancer.
WBCPC Board of Directors (2022-2025):
The World Bladder Cancer Patient Coalition co-developed the Bladder cancer session at the Patient Day of the European Association of Urology Congress 2022. The session was chaired by the WBCPC President, Dr Lydia Makaroff and Dr Eammon Rogers, Chair of the EAU Patient Information Office.
We were delighted to welcome patient advocates and our bladder cancer patient group community to the session. The EAU Patient Day Bladder Cancer session took place in-person for the first time.
The World Bladder Cancer Patient Coalition joined the European Association of Urology Nurses Annual Meeting 2022. Alex Filicevas, WBCPC Executive Director, joined the session Bladder Cancer: The Importance of the patient voice, Chaired by Dr Bente Thoft Jensen. The presentations and discussion focused on the importance of a meaningful patient-healthcare professional relationship with the ambition of improving patient outcomes and care experience. Speakers offered different views from their individual professional perspectives, helping to highlight the role of the patient voice in bladder cancer patient care and professional societies such as EAU and EAUN.
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
