Bladder Cancer Patient Day in France for a better informed patient

Cancer Vessie France, the WBCPC member organization in France, has joined forces with the French Association of Urology (AFU) to raise bladder cancer awareness in May.

As part of the activities, the organizations have dedicated a full day towards better-informed patients. The Patient Day programme, which took place on May 24 in Paris, focused on helping bladder cancer patients and their loved ones to better understand the bladder cancer care pathway.

SAVE THE DATE – World Bladder Cancer Patient Forum 2023

We are thrilled to announce that the World Bladder Cancer Patient Forum 2023 will take place on October 19, in Madrid, Spain! We invite you to Save The Date and hope to see you there in person.

This year we will once again bring the global bladder cancer patient community together for a day full of important discussions, learnings, sharing ideas, and networking.

More information about the agenda will follow very soon on our Forum dedicated page here.

Do you have a minute to spare to help us raise awareness?

We are halfway through Bladder Cancer Awareness Month. Can you share some time to help us raise awareness?

Do you have 1 minute to spare?

Show your support by adding the custom BCAM Twibbon cover image to your Facebook and/or Twitter profile picture.

When you do, share it with us. This way we can promote it on our social media channels and invite more people to do the same!

Real bladder cancer patient stories illustrate their journey

Bladder Cancer is the 10th most commonly diagnosed cancer in the world with 570,000 people diagnosed each year. Around the world, the 1.7 million people living with the condition have their own journeys and personal bladder cancer stories to share.

This year the World Bladder Cancer Patient Coalition (WBCPC) wants to spark conversations that raise awareness about the disease by highlighting the symptoms of bladder cancer and overcoming any barriers to seeking medical advice during Bladder Cancer Awareness Month.

Stigma and Bladder Cancer in Spain infographic

In collaboration with Grupo Español de Pacientes con Cáncer (GEPAC), we developed a new infographic titled “Stigma: The invisible side of bladder cancer”. This infographic highlights the impact of stigma on bladder cancer patients based on data from 312 patients and carers, including 73 from Spain, who shared their experiences through surveys and qualitative interviews

The themes explored in the infographic include:

  • The disease disadvantages
  • The experience of internal stigma
  • The experience of external stigma

The research was conducted to gain a deeper understanding of the impact of bladder cancer on patients and carers and to explore the existence,

Get involved in Bladder Cancer Awareness Month!

Bladder Cancer Awareness Month starts today and this year we will spark conversations that raise awareness about the disease by highlighting the symptoms of bladder cancer and overcoming any barriers to seeking medical advice.

This year we launch a new campaign with the motto “Feeling Unsure? Get Checked” to bring attention to the misrepresentation of symptoms and encourage people to re-evaluate their symptoms, as what they thought they saw may actually be something different.

Press Release: More than half of people with bladder cancer are misdiagnosed with another disease

• Over half (57%) of bladder cancer patients were first diagnosed with another condition
• More than a third (39%) of women with bladder cancer are initially misdiagnosed with Urinary Tract Infections (UTIs)
• Almost one-fifth (18%) of women with bladder cancer symptoms have to visit their GP five times or more before being referred to a specialist

According to a new global survey of bladder cancer patients, more than half (57%) of people with bladder cancer are initially diagnosed with another condition.

WECAN Retreat 2023 brings cancer patient advocacy leaders together

WECAN Group retreat 2023

On April 20-21, 2023, the World Bladder Cancer Patient Coalition joined leaders from more than 20 cancer patient advocacy organisations working in Europe and internationally for the WECAN Retreat 2023 in Frankfurt, Germany.

The annual WECAN Retreat 2023 was an intensive two-day meeting focused on collaboration, listening, discussions, and alignment of the community to drive forward the work to improve the lives of people affected by cancer. The participants reflected on past achievements,

In conversation with BEAT Bladder Cancer Australia

We have recently welcomed to the World Bladder Cancer Patient Coalition family the BEAT Bladder Cancer Australia, a Sydney-based national bladder cancer patient group. The charity was created in 2018 by Adam Lynch after his wife Anna sadly lost her battle with bladder cancer in 2017. Anna inspired Adam to form BEAT; a volunteer-led patient advocacy charity to help raise awareness of bladder cancer, and to provide information and support to those touched by bladder cancer.