The World Bladder Cancer Patient Coalition (WBCPC) together with our member organisation, Norwegian Bladder Cancer Society, joined the Community Advisory Board (CAB) meeting of the EU-funded project PRIME-ROSE (Precision Cancer Medicine Repurposing System Using Pragmatic Clinical Trials) that took place in Oslo, Norway on January 24-26, 2024. Jointly, both organisations shared unique experiences and needs of patients with advanced bladder cancer. The PRIME-ROSE project aims to help advanced cancer patients who have tried all standard treatments and could benefit from precision cancer medicine (PCM).
News & Events Category: EVENTS
Get involved during World Cancer Day
On the occasion of World Cancer Day on February 4, 2024, the World Bladder Cancer Patient Coalition (WBCPC) is proud to join forces with the international cancer community to raise awareness. Join us in raising bladder cancer awareness and the campaign to close the equity gaps that exist in cancer care around the world.
World Cancer Day 2024 organised by the Union for International Cancer Control (UICC) marks the third and last year of the ‘Close the care gap’ campaign centered on the issue of equity.
WBCPC shares patient-led research expertise at WECAN EBA Workshop
The World Bladder Cancer Patient Coalition (WBCPC) actively participated in the WECAN Evidence-Based Advocacy Training Workshop in Munich, Germany, on January 18-19, 2024. This event is part of the WECAN training programme to enhance the knowledge and capacity of patient advocates to conduct patient-led research.
WECAN – Working Group of European Cancer Advocacy Network’s objective is to develop a strong community of well-trained patient advocates. Alex Filicevas, Executive Director of WBCPC,
Launching the ‘Time to Accelerate’ Roadmap
The European Cancer Organisation organised a meeting titled ‘Time to Accelerate: Action on Men and Cancer – A Roadmap for Improvement’ on November 29, 2023, at the European Parliament in Brussels, Belgium. This meeting served as a platform to launch the joint Roadmap for Improvement, co-developed by the European Cancer Organisation, the European Association of Urology (EAU), and the Global Action on Men’s Health (GAHM).
The World Bladder Cancer Patient Coalition,
Recognising carers on International Caregiver Day
On November 26, 2023, International Caregiver Day, we take a moment to recognise and celebrate the invaluable contributions of carers around the world. They play a crucial role in supporting people affected by bladder cancer.
Bladder cancer, affecting millions of people worldwide, being the 10th most commonly diagnosed cancer, places significant physical and emotional strains on patients and their families. Carers, often family members or close friends, become the pillars of strength, offering not only physical assistance but also crucial emotional support throughout the journey.
British Association of Urological Nurses Conference 2023
The British Association of Urological Nurses (BAUN) Annual Conference 2023 took place from 19 to 21 November, in Liverpool, UK. The World Bladder Cancer Patient Coalition (WBCPC) joined the Fight Bladder Cancer (FBC) team at their booth to share with attendees the work being undertaken to raise awareness, support patients, and improve bladder cancer care.
WBCPC was present to understand first-hand how WBCPC’s UK member, Fight Bladder Cancer, engages with the urological community and those affected by bladder cancer.
WBCPC presents at European Cancer Summit 2023
The European Cancer Summit, organised by the European Cancer Organisation (ECO) took place through November 15-16, 2023 in Brussels, Belgium, and brought together leading oncology experts, experienced patient advocates, key opinion leaders, policymakers, and politicians to discuss key issues in reducing the burden of cancer, saving, and improving the lives of patients and the public.
The World Bladder Cancer Patient Coalition Executive Director, Alex Filicevas, joined the engaging panel discussion alongside other young cancer professionals titled “The Next Generation of Cancer Leaders”.
Associazione PaLiNUro’s 6th Congress
The Associazione PaLiNUro held its 6th Annual Congress on 11 November 2023, in Milan, Italy, which the World Bladder Cancer Patient Coalition (WBCPC) had the opportunity to attend in person.
The Congress was opened by Edoardo Fiorini, President of Associazione PaLiNUro, who presented the Italian data from WBCPC’s Global Bladder Cancer Patient & Carer Survey. This presentation highlighted how Italy’s quality of bladder cancer care compares with the rest of the world.
Urge to Act: WBCPC signs Manifesto for policy reform on Continence Health in Europe
WBCPC joined stakeholders for a policy focused EU Continence Health Summit 2023 organised by the European Association of Urology last November 8, 2023, in Brussels, Belgium.
Continence health problems are a major health issue impacting patients and their loved ones, national health systems, the economy, the environment and society. The Continence Health Summit brought stakeholders together to work on a common purpose: Underscore the need for action to improve continence health and to provide policymakers with a policy vision that can drive tangible change.
Cancer in Africa: WBCPC joins the 14th AORTIC Conference
The World Bladder Cancer Patient Coalition joined for the first time the 14th Cancer in Africa conference in Dakar, Senegal to better understand the realities of bladder cancer patient care in the region. Organised by the African Organisation for Research and Training in Cancer (AORTIC), the conference took place during November 2-6, 2023. The Conference brought together multidisciplinary specialists from the global cancer community focused on efforts to reduce the impact of cancer in Africa.
