Bladder Cancer Patient Day in France for a better informed patient

Cancer Vessie France, the WBCPC member organization in France, has joined forces with the French Association of Urology (AFU) to raise bladder cancer awareness in May.

As part of the activities, the organizations have dedicated a full day towards better-informed patients. The Patient Day programme, which took place on May 24 in Paris, focused on helping bladder cancer patients and their loved ones to better understand the bladder cancer care pathway.

SAVE THE DATE – World Bladder Cancer Patient Forum 2023

We are thrilled to announce that the World Bladder Cancer Patient Forum 2023 will take place on October 19, in Madrid, Spain! We invite you to Save The Date and hope to see you there in person.

This year we will once again bring the global bladder cancer patient community together for a day full of important discussions, learnings, sharing ideas, and networking.

More information about the agenda will follow very soon on our Forum dedicated page here.

Together united to achieve greater equity on Rare Disease Day!

The World Bladder Cancer Patient Coalition supports the Rare Disease Day international campaign that sheds light on rare diseases and advocates for health equity for all those with a rare disease.

Since 2008, Rare Disease Day, which takes place on the last day of February, has brought together patients, caregivers, family members, friends, and advocates worldwide. This year’s campaign revolves around working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

WBCPC will be speaking at the 38th Annual EAU Congress in March

EAU23, Europe’s largest Annual Urology Congress, will take place in Milan, Italy on March 10-13, 2023. The European Association of Urology (EAU) provides patient organisations and patient advocates with a stage to voice their goals and objectives at this congress, in addition to breaking scientific updates.

The World Bladder Cancer Patient Coalition President, Dr Lydia Makaroff, and Executive Director, Alex Filicevas will be speaking at the following sessions:

EAU Patient Day: Urological Patient Presentations 

Alex Filicevas

  • This session seeks to highlight the needs of patients with urological disease;

Together let’s close the gap in cancer care – World Cancer Day!

This World Cancer Day, the World Bladder Cancer Patient Coalition is proud to join the international cancer community efforts. Jointly, we advocate for greater access to care for marginalised populations and closing the gap in cancer care worldwide.

World Cancer Day takes place every year on February 4 and is the uniting global initiative under which the world comes together to raise the profile of cancer in a positive and inspiring way.  Spearheaded by the Union for International Cancer Control (UICC),

Get involved during World Cancer Day

On the occasion of World Cancer Day on February 4, 2022, the World Bladder Cancer Patient Coalition (WBCPC) is proud to join forces with the international cancer community to raise awareness.

World Cancer Day 2023 marks the second year of the three-year ‘Close the care gap’ campaign centered on the issue of equity. This second year is about uniting individuals and organisations, advocates and policymakers in calling for change and taking action.

Recording available of the panel discussion “Empowering genitourinary cancer patients to become their own best advocates” – World Cancer Congress 2022

Last October, The World Bladder Cancer Patient Coalition joined for the first time the World Cancer Congress 2022. Organized in Geneva, Switzerland, by the Union for International Cancer Control (UICC), the Congress welcomed 2000+ participants from over 120 countries for the first time since 2018.

WBCPC Executive Director, Alex Filicevas, joined a digital panel discussion titled “Empowering genitourinary cancer patients to become their own best advocates.” Organized by the European Association of Urology and co-developed by WBCPC,

Speaker reflections from the #BladderCancerForum22

At the World Bladder Cancer Patient Forum, Stephen Head, Senior Director of Patient Partnerships at Astellas Pharma Europe joined the panel discussion on taking bladder cancer patients’ voice forward, bringing an industry perspective to the table.

He discussed the importance of raising our voice as a global community as worldwide, over 570,000 people are diagnosed with bladder cancer and 1.7 million people find themselves living with the condition. He pointed out that there is an urgent need to raise awareness for people who are at risk of bladder cancer,

The ‘P’ Word: event on the challenge of urinary problems faced by people living with prostate and bladder cancer

On December 7, 2022, Alex Filicevas, Executive Director of the World Bladder Cancer Patient Coalition, co-chaired a joint event in the European Parliament on the challenge of urinary problems faced by people living with prostate and bladder cancer.

The event was a collaboration between the European Cancer Organisation, European Association of Urology, European Association of Urology Nurses – EAUN, World Federation of Incontinence and Pelvic Problems, 

WBCPC team at the SIU42 Annual Congress in Montreal, Canada

WBCPC Team at SIU42 Congress

The World Bladder Cancer Patient Coalition team attended the 42nd Annual SIU Congress – a leading global event organized by Société Internationale d’Urologie convening urologists worldwide. Our team included Dr Lydia Makaroff, President, Ken Bagshaw, Founding President and Alex Filicevas, Executive Director. This event marks the second-time participation for WBCPC at the SIU Congress.

We hosted a WBCPC Booth in the exhibit hall, where we invited urologists to learn more about the World Bladder Cancer Patient Coalition and our member organisations.