At the World Bladder Cancer Patient Forum 2024, a fireside chat titled Current Successes and Future Ambitions for Greater Awareness brought together Lori Cirefice, President of Cancer Vessie France; Lauren Pretorius, CEO of Campaigning for Cancer, South Africa; and Amy Samuel, a bladder cancer patient and advocate from Senegal. The session focused on the current state of bladder cancer awareness and the steps needed to achieve further progress in this area.
News & Events Category: EVENTS
Raising bladder cancer awareness around the globe
The World Bladder Cancer Patient Forum 2024 in Punta Cana brought together advocates, healthcare professionals, and community leaders from around the world to share their unique approaches to raising awareness about bladder cancer. Through presentations from Italy, Canada, France, and countries across Africa, the Forum highlighted the dedication of advocates working to improve lives for people with bladder cancer.
Laura Magenta, representing Italy’s only bladder cancer patient organisation, Associazione PaLiNUro,
Delivering patient-centred progress in Clinical Trials
At the World Bladder Cancer Patient Forum 2024, a panel of experts joined to discuss patient involvement in clinical trials. Moderated by WBCPC President Dr Lydia Makaroff, the session explored how engaging patients throughout the research process – design, recruitment, and education – can lead to more impactful trials and improved outcomes.
Dr Lydia Makaroff set the stage by highlighting recent data from the WBCPC Global Survey, where 84% of bladder cancer patients reported they did not receive any information about participating in clinical trials.
Celebrating progress: Reflecting on five years of global advocacy for bladder cancer
At the World Bladder Cancer Patient Forum 2024, a fireside chat style conversation featuring Dr Lydia Makaroff, outgoing President of the World Bladder Cancer Patient Coalition (WBCPC), and Alex Filicevas, Executive Director of WBCPC, provided an opportunity to reflect on the Coalition’s achievements over its first five years. The discussion highlighted the progress made in bladder cancer patient advocacy, awareness, and support, while also considering the road ahead.
The coalition, founded in 2019 with three founding members has grown to include 15 organisations across 12 countries today.
Celebrating Carers this International Caregiver Day
On November 26, 2024, the world marks the International Caregiver Day by appreciating the important contributions of carers around the world, especially those supporting people affected by bladder cancer.
Bladder cancer, the 9th most commonly diagnosed cancer globally, affects not only patients but also their families and friends. Carers, often close family members or friends, play an essential role in providing practical assistance and emotional support throughout the cancer journey.
Reconnect with highlights from #BladderCancerForum24 in this video
The World Bladder Cancer Patient Forum 2024, held in Punta Cana, Dominican Republic, brought together bladder cancer patient advocates, healthcare professionals, and experts from across the globe.
The first day featured discussions on patient advocacy, healthcare partnerships, and the latest research, sparking meaningful conversations aimed at strengthening the global support network for people affected by bladder cancer. On the second day, the focus shifted to the power of collective action and global collaboration.
Advocating for patient rights in Latin America
At the World Bladder Cancer Patient Forum 2024, a fireside chat featuring Fiorella Gagliardi, President of VICARE GU organisation in Argentina, and Marie Magenhann Cueto, Community Engagement Coordinator at WBCPC, shed light on the need to improve cancer patient rights in Latin America. The conversation focused on the challenges facing bladder cancer patients in the region and how advocacy efforts can improve care and access to essential resources.
The discussion highlighted the unequal access to healthcare services that many patients in Latin America encounter,
WBCPC Presents at the SIU Congress in New Delhi
The World Bladder Cancer Patient Coalition team joined the 44th Annual SIU Congress – a leading global event organised by Société Internationale d’Urologie convening urologists worldwide. This marks the fourth consecutive year WBCPC was invited to join the Congress.
This year, the second WBCPC Abstract Poster (see 2023 SIU Poster here) was accepted for presentation at the Congress. Our Executive Director Alex Filicevas is presenting the Poster Divergent Experiences of Bladder Cancer Patients: A Focus on Advanced and Metastatic Disease Stages.
World Bladder Cancer Patient Forum 2024 – Strengthening bladder cancer advocacy and collaboration
The second day of the World Bladder Cancer Patient Forum 2024, held on October 2 in Punta Cana, Dominican Republic, built on the success of the previous day, focusing on the importance of collaboration. It was a day of valuable discussions, global insights, and shared strategies aimed at improving bladder cancer care and support.
By bringing together patient advocates and our member organisations from across the globe, the day highlighted the need for collective action to raise awareness and improve patient outcomes.
World Bladder Cancer Patient Forum 2024 – bringing bladder cancer advocacy to the Forefront
The World Bladder Cancer Patient Forum 2024 took place in Punta Cana, Dominican Republic, starting with an engaging first day on October 1st. This year’s Forum brought together bladder cancer patient advocates, healthcare professionals, and experts from many different countries to discuss key topics and exchange knowledge.
Focusing on patient advocacy, healthcare collaboration, and the latest research, the Forum’s first day facilitated important conversations aimed at strengthening support people affected by bladder cancer around the world.
