Together united to achieve greater equity on Rare Disease Day!

Since 2008, Rare Disease Day, which takes place on the last day of February, has brought together patients, caregivers, family members, friends, and advocates worldwide. This leap year it is truly rare disease – February 29. The World Bladder Cancer Patient Coalition supports the Rare Disease Day international campaign that aims at increasing awareness among the general public and decision-makers about rare diseases and their influence on the lives of families living with these conditions.

Amit’s bladder cancer journey

Bladder Cancer is the 9th most commonly diagnosed cancer in the world with 614,000 people diagnosed each year. Around the world, the 1.9 million people living with the condition have their own journeys and personal bladder cancer stories to share.

Below we are honoured to share the bladder cancer journey of Amit. Bladder cancer stories are a powerful reminder of the impact of bladder cancer and also help raise awareness of bladder cancer and highlight the urgent need for new treatments and research,

Close the Care Gap – opportunities to improve bladder cancer care

World Cancer Day is an opportunity to bring attention to bladder cancer and experiences of the people affected by it with a call to close the care gap. Over 500,000 people are diagnosed with bladder cancer around the world annually. This World Cancer Day, the World Bladder Cancer Patient Coalition is proud to join the international cancer community efforts. Jointly, we advocate for greater access to care for marginalised populations and closing the gap in cancer care worldwide.

Setting WBCPC work priorities for 2024

In this video, our President, Dr Lydia Makaroff, and Executive Director, Alex Filicevas wish the bladder cancer patient community a happy and healthy New Year and share some of the exciting projects and activities taking place in 2024.

We highlight many different projects that will take place this year:

  • Collaborate with healthcare professionals and a range of stakeholders, especially in countries where bladder cancer patient groups do not exist yet.

Raising bladder cancer awareness in India

For the second consecutive year, the World Bladder Cancer Patient Coalition was thrilled to offer the Bladder Cancer Awareness Month Grants (BCAM Grant) in 2023. The BCAM Grants enable patient organisations, support, or advocacy groups in low and middle-income countries to bring awareness to bladder cancer in their communities.

This year, one of our BCAM grant awardees Women’s Education and Economic Development Society (WEEDS) organised activities in India.

Some highlights of activities organised in different districts of India:

  • Two urologists,

Raising bladder cancer awareness in Egypt

For the second consecutive year, the World Bladder Cancer Patient Coalition was thrilled to offer the Bladder Cancer Awareness Month Grants (BCAM Grant) in 2023. The BCAM Grants enable patient organisations, support, or advocacy groups in low and middle-income countries to bring awareness to bladder cancer in their communities.

This year, one of our BCAM grant awardees Mansoura University Safety Society (MUSS) organised activities in Egypt. They have taken inspiring steps to bring bladder cancer awareness to their community in May and beyond.

BCAM Grant 2023, Direct Impact Foundation for Youth, raises bladder cancer awareness in Malawi’s rural areas

For the second consecutive year, the World Bladder Cancer Patient Coalition was thrilled to offer the Bladder Cancer Awareness Month Grants (BCAM Grant) for 2023. These grants empower patient organisations, support groups and advocacy entities in low and middle-income countries to raise awareness about bladder cancer within their communities.

This year, The Direct Impact Foundation for Youth (DIFY) from Malawi received one of our BCAM Grants. DIFY has made commendable efforts to promote bladder cancer awareness in their local community throughout the month of May.

From Uncertainty to Action: Our Bladder Cancer Awareness Month 2023 Report

Every year, the month of May is a significant time for our community. It is when we join forces for the Bladder Cancer Awareness Month (BCAM). Explore our latest campaign report full of highlights of global participation and unique initiatives to raise awareness in local communities.

In 2023, we embarked on a revised mission with the “Feeling Unsure? Get Checked” campaign, part of our continued efforts for Bladder Cancer Awareness Month.

Global Insights into Bladder Cancer Care: A Comprehensive Survey

The World Bladder Cancer Patient Coalition in collaboration with UroToday launched a four-part video series to discuss the findings from the Global Bladder Cancer Patient and Carer Experience Survey. Chaired by Dr Ashish Kamat, each episode covers different areas of patient pathway with unique reflections from experts who have contributed to the project.

In this first episode of video series organised by Urotoday.com and the World Bladder Cancer Patient Coalition,