Lydia Makaroff, World Bladder Cancer Patient Coalition (WBCPC) President, represented the organisation at the World Health Organization’s Informal consultation with people living with non-communicable diseases (PLWNCDs) and mental health conditions (MHCs) to highlight the importance of including people with lived experiences in co-designing policies, programs, and principles.
The consultation supports the co-creation of the engagement framework and explored the importance of how meaningful engagement of PLWNCDs and MHCs is and can be further implemented at a regional and national level.
We would like to thank every patient and caregiver that have completed our Global Bladder Cancer Patient Experience Survey.
Last October 2021, we launched our first-ever global bladder cancer patient experience survey. The survey represented a collaborative effort with our 11 member organisations from around the world.
Our survey, available in 11 languages, received responses from patients and caregivers from 48 countries across the world.
We are now reviewing the data and analysing the insights that patients and caregivers have shared with us.
This May for Bladder Cancer Awareness Month, we invite all of you to overcome the feeling of embarrassment in our lives through affirmations whilst helping raise awareness about bladder cancer symptoms.
Bladder Cancer is the 10th most commonly diagnosed cancer. A timely diagnosis significantly increases the chance of long-term survival and quality of life. Blood in the urine is the most important warning sign of bladder cancer to watch out for.
‘Don’t Go Red. Go to a Doctor’ campaign launched to raise greater awareness of bladder cancer across the world.
- ‘Don’t Go Red. Go to a Doctor’ aims to raise awareness of bladder cancer – the 10th most common form of cancer in the world
- One of the main barriers to diagnosis is mistaking symptoms of bladder cancer for non-threatening urinary conditions
- If diagnosed early,
The World Bladder Cancer Patient Coalition (WBCPC) has decided to withdraw from the European Cancer Patient Coalition as a Full Member organisation. WBCPC has therefore terminated the Membership as of April 14, 2022. The WBCPC Board of Directors has decided that the vision and the future direction of both organisations no longer aligns for an effective collaboration.
For further information please get in touch with our Executive Director, Alex Filicevas, at alex.filicevas@worldbladdercancer.org