The World Bladder Cancer Patient Coalition supports the Rare Disease Day international campaign that shines a light on rare diseases and advocates for
health equity for all those living with a rare disease.
With about 300 million people living with a rare disease, there is an urgent need to expand research, increase levels of care, approve new therapeutics, and provide access for every patient who wants or needs treatment.
Today, we are thrilled to launch our Arabic edition of the Start-up guide for bladder cancer patient groups, which is an important step in our outreach and community plans for Middle East and Africa region countries.
Bladder cancer patient groups across the globe, small and large, have an important role to play in improving the situation for patients and their families. It is our vision to see a bladder cancer patient group in every country,
The first World Bladder Cancer Patient Forum 2021 brought together the global bladder cancer community under the theme of “Changing bladder cancer patient care together”, with a discussion and inspiring examples and insights by member organisations working to improve the lives of people affected by bladder cancer around the globe.
At the World Bladder Cancer Patient Forum, we have asked our panelists to share advice for their counterparts around the world.
Andrea Maddox-Smith, CEO of the Bladder Cancer Advocacy Network (BCAN), founding member of the World Bladder Cancer Patient Coalition (WBCPC), has stepped down from the organisation’s Board of Directors. Andrea, who served in a role as Vice-President, has actively contributed to the launch and development of the WBCPC ahead of and beyond its launch in 2019.
Dr Stephanie Chisolm will be succeeding Andrea on the WBCPC Board of Directors as a representative of BCAN.
On the occasion of World Cancer Day on February 4, 2022, the World Bladder Cancer Patient Coalition (WBCPC) is proud to join the international cancer community efforts. Jointly we advocate for greater access to care for marginalised populations and closing the gap in cancer care worldwide.
“Close the care gap” is the theme of the new three-year campaign for World Cancer Day, one of the most important health awareness days in the year led by the Union for International Cancer Control (UICC) to promote greater equity in health care provision for all populations.
In this video, our president, Dr Lydia Makaroff, wishes the bladder cancer community a happy and healthy New Year and shares the priorities for 2022.
She highlights many different projects that will take place this year. Our Global Bladder Cancer Patient Survey that will help us to align our work with patient needs and champion their views to drive care improvement. The expansion of the Start-up guide suite to more languages.
We’ve created our Start-up guide for bladder cancer patient groups, now available in four languages, for anyone with ambitions to start a bladder cancer patient group in their country. It is available to download digitally immediately, but we also wanted to expand its reach. If you would like to receive a paper copy for yourself, or someone you know, who is looking to start a bladder cancer patient support group or an organisation,
We have just published the World Bladder Cancer Patient Forum Summary report. If you’ve missed the event or would like to revisit the discussions – explore the report. The Report summarises the presentations, discussions and collective ideas shared at the event.
The first World Bladder Cancer Patient Forum took place virtually on September 22, bringing together over 150 registered attendees from 35 countries.
The Forum brought together leading voices from around the world.
The Global Cancer Coalitions Network hosted its second “Coalition Connection 2: COVID19 Vaccines & Cancer” virtual event on November 23. The event was moderated by Alex Filicevas, Executive Director of the World Bladder Cancer Patient Coalition.
Formed in the wake of COVID-19, the Global Cancer Coalition Network is a collaboration of nine global cancer coalitions and alliances, representing 750 patient organisations working on behalf of 14 million cancer patients around the world.
This survey is now closed.
The Global Bladder Cancer Patient Experience Survey is now available in Arabic, English, French, Hindi, Italian, Japanese, Norwegian, Polish, Portuguese, Russian and Spanish.
The first of its kind, the survey aims to capture the experiences of bladder cancer patients and caregivers around the world. Patient and carer experience data helps to identify what is important to them, and in turn, drive patient-centered care improvements. Yet currently,
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
