All.Can Summit 2022 – Taking actions: implementing efficiency in cancer care globally

The World Bladder Cancer Patient Coalition (WBCPC) joined the All.Can Global Summit on June 15 – 16, 2022, sharing patient perspective for a discussion focused on Supporting Healthcare Professionals.

This year’s All.Can Global Summit, opened by WBCPC Executive Director and All.Can President Alex Filicevas, explored concrete ways to overcome inefficiencies in cancer care, by hearing from 26 panellists who provided concrete recommendations for practice changes around four key themes:

  • empowering and partnering with people
  • supporting healthcare professionals
  • implementing a data-driven learning system
  • investing in efficient technologies.

Inaugural meeting sees the launch of Bladder Cancer India

The initiative of the launch of Bladder Cancer India is a collaborative project where medical, surgical, and radiation oncologists experts along with patient organisations have come forward to work together to strengthen and make Bladder Cancer India a reality for patients in the country.

On May 27, Bladder Cancer India hosted an inaugural meeting, to discuss the need for support groups for bladder cancer patients and caregivers in India. Alex Filicevas,

Week Against Cancer – A call to accelerate the implementation of Europe’s Beating Cancer Plan

On the occasion of European Week Against Cancer (EWAC), taking place every year between 25 and 31 May, the World Bladder Cancer Patient Coalition (WBCPC) joins the community call for bringing forward the ambitions within Europe’s Beating Cancer Plan at the national and regional level.

The EWAC campaign and the Association of European Cancer Leagues (ECL) aim to highlight the role that each one of us has in accelerating the implementation of Europe’s Beating Cancer Plan.

WBCPC joins WHO consultation on people living with NCDs and mental health conditions

Lydia Makaroff, World Bladder Cancer Patient Coalition (WBCPC) President, represented the organisation at the World Health Organization’s Informal consultation with people living with non-communicable diseases (PLWNCDs) and mental health conditions (MHCs) to highlight the importance of including people with lived experiences in co-designing policies, programs, and principles.

The consultation supports the co-creation of the engagement framework and explored the importance of how meaningful engagement of PLWNCDs and MHCs is and can be further implemented at a regional and national level.

Register – Coalition Connection 3: Sustaining Patient Advocacy Post-Covid – March 29

The Global Cancer Coalitions Network (GCCN) is hosting a free virtual event on March 29, at 17:00 CEST, titled “Coalition Connection 3: Sustaining Patient Advocacy Post-Covid”.

Many patient advocacy organizations faced extraordinary challenges during the COVID-19 pandemic, from loss of crucial funding to significant reductions in human resources, both paid and unpaid.

As we look to a post-pandemic future, during the GCCN event you will hear three perspectives from:

• The advocacy world on how patient advocacy organizations coped with those challenges and what ‘silver linings’ they found;

International Women’s Day – how do we #BreakTheBias?

The theme of International Women’s Day (IWD) this year is #BreakTheBias –  the start of a gender-equal world. This theme calls for a world free of bias, stereotypes and discrimination; one that is diverse, equitable, and inclusive where women can move ahead.

This is an opportunity to stand and advocate for breaking the existing biases and disadvantages that women affected by bladder cancer face today around the world. Although bladder cancer is often considered a disease of men of older age,

Together united to achieve greater equity – Rare Disease Day!

The World Bladder Cancer Patient Coalition supports the Rare Disease Day international campaign that shines a light on rare diseases and advocates for

clomid

health equity for all those living with a rare disease.

With about 300 million people living with a rare disease, there is an urgent need to expand research, increase levels of care, approve new therapeutics, and provide access for every patient who wants or needs treatment.

Advice from #BladderCancerForum – our new video series

The first World Bladder Cancer Patient Forum 2021  brought together the global bladder cancer community under the theme of “Changing bladder cancer patient care together”, with a discussion and inspiring examples and insights by member organisations working to improve the lives of people affected by bladder cancer around the globe.  

At the World Bladder Cancer Patient Forum, we have asked our panelists to share advice for their counterparts around the world.

World Bladder Cancer Patient Forum 2021 summary report out now

World Bladder Cancer Patient Forum - Summary Report 2021 - WBCPC

We have just published the World Bladder Cancer Patient Forum Summary report. If you’ve missed the event or would like to revisit the discussions – explore the report. The Report summarises the presentations, discussions and collective ideas shared at the event.

The first World Bladder Cancer Patient Forum took place virtually on September 22, bringing together over 150 registered attendees from 35 countries.

The Forum brought together leading voices from around the world.