The World Bladder Cancer Patient Coalition (WBCPC) had the honour to join the International Bladder Cancer Group (IBCG) Retreat in Houston, Texas (USA). This important event brought together experts from around the world to develop new recommendations for managing bladder cancer. These guidelines will help shape clinical decisions for doctors and improve care for people affected by bladder cancer.
Representing WBCPC at the retreat were our President, Dr Lydia Makaroff, and Executive Director,
ASCO Genitourinary Cancer Symposium is the leading annual meeting organised by the American Society of Clinical Oncology on January 25-27, 2024. It focuses on genitourinary cancers and scientific research in this field. We have selected four bladder cancer research studies presented at ASCO GU, with lay summaries of each study provided below.
This year, World Bladder Cancer Patient Coalition (WBCPC) also marked a significant achievement by presenting the Global Bladder Cancer Patient &
The World Bladder Cancer Patient Coalition (WBCPC) marked a significant achievement by presenting the Global Bladder Cancer Patient & Carer Survey results poster at the ASCO Genitourinary Cancers Symposium in San Francisco, California (USA). The leading annual meeting organised by the American Society of Clinical Oncology on January 25-27, 2024. This marked the organisation’s first poster at this prestigious event, underscoring our growing commitment and impact in the field of bladder cancer research and advocacy.
The World Bladder Cancer Patient Coalition (WBCPC) together with our member organisation, Norwegian Bladder Cancer Society, joined the Community Advisory Board (CAB) meeting of the EU-funded project PRIME-ROSE (Precision Cancer Medicine Repurposing System Using Pragmatic Clinical Trials) that took place in Oslo, Norway on January 24-26, 2024. Jointly, both organisations shared unique experiences and needs of patients with advanced bladder cancer. The PRIME-ROSE project aims to help advanced cancer patients who have tried all standard treatments and could benefit from precision cancer medicine (PCM).
The World Bladder Cancer Patient Coalition (WBCPC) actively participated in the WECAN Evidence-Based Advocacy Training Workshop in Munich, Germany, on January 18-19, 2024. This event is part of the WECAN training programme to enhance the knowledge and capacity of patient advocates to conduct patient-led research.
WECAN – Working Group of European Cancer Advocacy Network’s objective is to develop a strong community of well-trained patient advocates. Alex Filicevas, Executive Director of WBCPC,
The European Cancer Organisation organised a meeting titled ‘Time to Accelerate: Action on Men and Cancer – A Roadmap for Improvement’ on November 29, 2023, at the European Parliament in Brussels, Belgium. This meeting served as a platform to launch the joint Roadmap for Improvement, co-developed by the European Cancer Organisation, the European Association of Urology (EAU), and the Global Action on Men’s Health (GAHM).
The World Bladder Cancer Patient Coalition,
The European Cancer Summit, organised by the European Cancer Organisation (ECO) took place through November 15-16, 2023 in Brussels, Belgium, and brought together leading oncology experts, experienced patient advocates, key opinion leaders, policymakers, and politicians to discuss key issues in reducing the burden of cancer, saving, and improving the lives of patients and the public.
The World Bladder Cancer Patient Coalition Executive Director, Alex Filicevas, joined the engaging panel discussion alongside other young cancer professionals titled “The Next Generation of Cancer Leaders”.
The Associazione PaLiNUro held its 6th Annual Congress on 11 November 2023, in Milan, Italy, which the World Bladder Cancer Patient Coalition (WBCPC) had the opportunity to attend in person.
The Congress was opened by Edoardo Fiorini, President of Associazione PaLiNUro, who presented the Italian data from WBCPC’s Global Bladder Cancer Patient & Carer Survey. This presentation highlighted how Italy’s quality of bladder cancer care compares with the rest of the world.
WBCPC joined stakeholders for a policy focused EU Continence Health Summit 2023 organised by the European Association of Urology last November 8, 2023, in Brussels, Belgium.
Continence health problems are a major health issue impacting patients and their loved ones, national health systems, the economy, the environment and society. The Continence Health Summit brought stakeholders together to work on a common purpose: Underscore the need for action to improve continence health and to provide policymakers with a policy vision that can drive tangible change.
On September 25, together with the European Association of Urology we were delighted to bring together key stakeholders for a policy roundtable hosted by MEP István Ujhelyi marking the launch of the European White Paper on Bladder Cancer.
Bladder cancer is the 5th most common cancer in Europe. Despite having one of the highest lifetime costs of any cancer, the research funding is among the lowest. Lack of bladder cancer awareness drastically hinders early detection,
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
