WBCPC at GO NORTE International GU Debates 2022

GONORTE-GU-DEBATES-FILICEVAS

On October 27-28, the WBCPC Executive Director joined the GO NORTE International GU Debates 2022 in Limpias, Spain. With over 100+ attendees from all over Spain and international experts, the event featured discussions on advances in Genitourinary cancers, challenges in care and approaches for better patient outcomes in bladder cancer, kidney cancer and prostate cancer.

Alex Filicevas presented in the session focused on the patient’s voice in bladder cancer. Addressing the audience,

Examples from the patient community at World Bladder Cancer Patient Forum 2022

The World Bladder Cancer Patient Forum brought our international community of patient groups together on September 8. The “Rising to the challenge – Examples from the patient community” session featured three projects from WBCPC member organisations in Australia, Canada and Italy. They showcased the diversity of incredible efforts of patient organisations to support people affected by bladder cancer and drive much-needed change locally. These included:

  • Dr Stepahnie Demkiw,

World Bladder Cancer Patient Forum 2022 – Taking bladder cancer patient’s voice forward

The second World Bladder Cancer Patient Forum brought together our community in Paris and virtually. This year’s Forum was a milestone event for our international community. Both because we got to get together for the first time in person and as we shared advance insights from our first bladder cancer patient and caregiver survey.

This year’s theme, ‘Taking bladder cancer patients’ voice forward’, was a stepping stone for action. The theme recognises the need for international multi-stakeholder collaboration to achieve common goal of improving the lives of people affected by bladder cancer no matter where they live in the world.

Inaugural meeting sees the launch of Bladder Cancer India

The initiative of the launch of Bladder Cancer India is a collaborative project where medical, surgical, and radiation oncologists experts along with patient organisations have come forward to work together to strengthen and make Bladder Cancer India a reality for patients in the country.

On May 27, Bladder Cancer India hosted an inaugural meeting, to discuss the need for support groups for bladder cancer patients and caregivers in India. Alex Filicevas,

International Women’s Day – how do we #BreakTheBias?

The theme of International Women’s Day (IWD) this year is #BreakTheBias –  the start of a gender-equal world. This theme calls for a world free of bias, stereotypes and discrimination; one that is diverse, equitable, and inclusive where women can move ahead.

This is an opportunity to stand and advocate for breaking the existing biases and disadvantages that women affected by bladder cancer face today around the world. Although bladder cancer is often considered a disease of men of older age,

Together united to achieve greater equity – Rare Disease Day!

The World Bladder Cancer Patient Coalition supports the Rare Disease Day international campaign that shines a light on rare diseases and advocates for

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health equity for all those living with a rare disease.

With about 300 million people living with a rare disease, there is an urgent need to expand research, increase levels of care, approve new therapeutics, and provide access for every patient who wants or needs treatment.

Advice from #BladderCancerForum – our new video series

The first World Bladder Cancer Patient Forum 2021  brought together the global bladder cancer community under the theme of “Changing bladder cancer patient care together”, with a discussion and inspiring examples and insights by member organisations working to improve the lives of people affected by bladder cancer around the globe.  

At the World Bladder Cancer Patient Forum, we have asked our panelists to share advice for their counterparts around the world.

World Bladder Cancer Patient Forum 2021 summary report out now

World Bladder Cancer Patient Forum - Summary Report 2021 - WBCPC

We have just published the World Bladder Cancer Patient Forum Summary report. If you’ve missed the event or would like to revisit the discussions – explore the report. The Report summarises the presentations, discussions and collective ideas shared at the event.

The first World Bladder Cancer Patient Forum took place virtually on September 22, bringing together over 150 registered attendees from 35 countries.

The Forum brought together leading voices from around the world.

WBCPC connects with international urology community at SIU41 Congress

WBCPC Meeting with Stakeholders at SIU41 in Dubai

The World Bladder Cancer Patient Coalition joined for the first time the Annual Congress of Société Internationale d’Urologie SIU41. The Congress took place during November 10-14, 2021, in Dubai, United Arab Emirates.

This event marks the first-time participation at the SIU41 and the first time the World Bladder Cancer Patient Coalition hosts an exhibit booth at a leading international event. We had the opportunity to present the organisation and our activities to an international urology community.