International Women’s Day – #AccelerateAction

On International Women’s Day, the World Bladder Cancer Patient Coalition is stepping forward in solidarity to #AccelerateAction for women affected by bladder cancer. This year’s theme emphasises the urgent need for progress, because, at the current rate, achieving gender equality could take over 130 years. We cannot afford to wait.

Why we need to accelerate action

Women with bladder cancer face unique challenges – from delayed diagnoses due to symptoms being mistaken for other conditions to limited access to clinical trials and treatment options.

Together, united to achieve greater equity on Rare Disease Day!

Since 2008, Rare Disease Day has united people worldwide to raise awareness of rare diseases and the challenges they bring. Held annually on the last day of February, it highlights conditions that often go unnoticed.

This February 28, the World Bladder Cancer Patient Coalition (WBCPC) is supporting the campaign to improve care, research, and treatment for all rare diseases, including rare types of bladder cancer. Even though these cancers are uncommon,

Taking steps forward for joint policy action – EUrology Session on Bladder Cancer

The EUrology Session on Bladder Cancer brought together policymakers, clinicians, researchers, and patient advocates to discuss pressing issues in bladder cancer prevention, diagnosis, treatment, and patient care. The session highlighted the urgent need for stronger policy action, investment in research and innovation, and a greater focus on patient-centred care.

It was an opportunity to launch the Tackling Bladder Cancer in Europe Summary Booklet which is available to download below. Based on the White Paper on Bladder cancer published in 2023 together with the European Association of Urology,

Get involved for World Cancer Day 2025: United by Unique

On the occasion of World Cancer Day on February 4, 2025, the World Bladder Cancer Patient Coalition (WBCPC) is proud to join forces with the international cancer community to raise awareness. This year, under the theme “United by Unique” we invite you to raise awareness of bladder cancer and advocate for equitable, people-centred care for all.

World Cancer Day 2025 is led by the Union for International Cancer Control (UICC),

WBCPC joins educational bladder cancer event in Qatar

Bladder cancer remains one of the most under-recognised cancers, yet early detection is critical to improving patient outcomes. On 30 January 2025, World Bladder Cancer Patient Coalition (WBCPC) Executive Director Alex Filicevas joined the Cancer Prevention Webinar Series, hosted by the University of Doha for Science and Technology and the Qatar Cancer Society, to discuss key risk factors, national guidelines, and the role of patient advocacy and support in improving outcomes for people affected by bladder cancer.

EUrology session: bringing policy focus to bladder cancer

The World Bladder Cancer Patient Coalition (WBCPC), in collaboration with the European Association of Urology (EAU), is hosting an important bladder cancer awareness event at the EAU Office in Brussels on February 19, 2025.

This event, part of the EUrology session series, will bring together EU policymakers, healthcare professionals, and patient advocates to discuss the challenges in bladder cancer care and explore actionable solutions. A key focus will be the presentation of the joint WBCPC-EAU White Paper,

Strengthening the patient voice in HTA

The session titled “The role of the patient voice in Health Technology Assessment – HTA 101” at the World Bladder Cancer Patient Forum 2024 brought patient experts from our community to explore how this critical process shapes healthcare decision-making. The discussion highlighted the importance of HTA in ensuring that treatments, medical devices, and even public health campaigns deliver value not just in terms of cost but also in their impact on the lives of people affected.

Building effective partnerships with healthcare professionals

At the World Bladder Cancer Patient Forum 2024, a dynamic panel discussion explored the critical role of collaboration between bladder cancer patient organisations and healthcare professionals. Moderated by Dr Stephanie Demkiw, Co-founder of Bladder Cancer Awareness Australia, the session featured insights from Alex Filicevas, WBCPC Executive Director; Lauren Pretorius, CEO of Campaigning for Cancer and Melanie Costin, a bladder cancer patient and advocate from Fight Bladder Cancer and Adam Lynch,

Policy as a tool to advocate for bladder cancer patient needs

At the World Bladder Cancer Patient Forum 2024, Eva María Ruiz de Castilla, Executive Director of The Latin America Patients Academy (LAPA), conducted a practical workshop titled Policy as a Tool to Advocate for Bladder Cancer Patient Needs. In this interactive session, Eva María guided patient advocates through the process of using policy to improve healthcare access and ensure better treatment, care and support for bladder cancer patients.

Uniting to meet bladder cancer patient needs

At the World Bladder Cancer Patient Forum 2024, advocates shared powerful insights on enhancing patient support and tackling the unique challenges of bladder cancer care.

Michelle Colero from Bladder Cancer Canada aopened the discussion by sharing her personal connection to bladder cancer and her journey in the non-profit sector. Her organisation provides vital support groups tailored to the unique needs of caregivers and patients, including those with metastatic or muscle-invasive bladder cancer.