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The New Year is the best time to turn over a new leaf, try again and find new opportunities to make the coming year the best one yet. Below you will find some suggested New Year’s resolutions just for you to make a positive impact on your community of people affected by bladder cancer.
Start a bladder cancer patient support group
Make a resolution to start a patient and/or carer support group for people affected by bladder cancer and create a safe,
We are delighted to welcome the Swedish patient organisation Blåscancerförbundet or The Swedish Bladder Cancer Society in English to our Coalition. The organisation becomes the 14th member organisation of the World Bladder Cancer Patient Coalition.
The Swedish Blåscancerförbundet was created in June 2020 and aims to prevent, combat and mitigate the effects of bladder cancer as well as to improve care and the quality of life for people affected by bladder cancer.
The World Bladder Cancer Patient Forum 2022 hosted action-oriented conversations addressing the most challenging issues facing bladder cancer patients. It also featured presentations from our members on their projects that have positively impacted people affected by bladder cancer.
If you have missed the event and/or would like to revisit the discussions, we invite you to watch the recording on our WBCPC Youtube channel.
Watch this space as we publish the World Bladder Cancer Patient Forum 2022 Summary report soon.
The World Bladder Cancer Patient Coalition has now published its Annual Report 2021 showcasing the activities and impact of the organisation throughout the year. 2021 was our third year of existence, and we now unite 12 organisations in 9 countries. We get inspired daily by seeing our member organisations’ commitment and drive to support people affected by bladder cancer in their countries.
In 2021 we raised awareness and continued fostering an international bladder cancer community by:
We are thrilled to welcome the latest member organisation – an Australian patient group, BEAT Bladder Cancer Australia, to the World Bladder Cancer Patient Coalition.
Established in Sydney, New South Wales, BEAT works across Australia and its mission is:
Lydia Makaroff, President of the World Bladder Cancer Patient Coalition and Chief Executive Officer of Fight Bladder Cancer UK, highlights the importance of setting up an online support forum for people affected by bladder cancer:
Fight Bladder Cancer UK started from a very personal battle. Andrew, one of our founders, was diagnosed with a Stage 4, G3 bladder cancer in summer 2009. He had been experiencing symptoms for over 18 months but was misdiagnosed with an enlarged prostate.
Ken Bagshaw, Founding President of the World Bladder Cancer Patient Coalition and Board Member of Bladder Cancer Canada, shares the initiative of an annual country-wide awareness-raising walk for bladder cancer patients in Canada:
Each year at Bladder Cancer Canada (BCC) we organise a country-wide awareness-raising walk for bladder cancer. Awareness walks are widely adopted by patient charities and they serve to bring people associated with the particular disease together; to encourage walkers to raise funds by collecting donations from family,
Bladder Cancer is the 10th most commonly diagnosed cancer in the world with 570,000 people diagnosed each year. Around the world, the 1.7 million people living with the condition have their own journeys and personal bladder cancer stories to share.
Below we are honoured to bring to you two real patient stories where they share their different personal journeys. These stories are a powerful reminder of the impact of bladder cancer.
Lori Cirefice Board of Directors for the World Bladder Cancer Patient Coalition, and Patient Coalition Delegate with Cancer Vessie France – Les Zuros shares the development of an awareness poster about the sign and symptoms of bladder cancer:
In May 2019, Association Les Zuros developed an awareness poster about the signs and symptoms of bladder cancer, considering the surprising lack of awareness around bladder cancer compared to other common cancers in France.
We are delighted to welcome the Dutch patient organisation Leven met blaas- of nierkanker (LMBNK) or Living with Bladder and/or Kidney Cancer in English, to the World Bladder Cancer Patient Coalition. A well-established organisation in the Netherlands, LMBNK becomes the 12th member organisation of the World Bladder Cancer Patient Coalition.
LMBNK promotes the interests of bladder cancer and kidney cancer patients and brings people affected by the disease together for peer support,
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
For general information, information about membership or policy information, please contact the WBCPC Secretariat at info@worldbladdercancer.org
