18 March 2022. NEWS, Raising Awareness

Podcast Patient and healthcare professional perspectives from ESMO 2021

Alex Filicevas sits down with Dr Tom Powles to reflect on patient voice in leading oncology congresses, and bladder and kidney cancer research highlights from ESMO 2021.

Our community wants to take those active roles as equal partner, not just a voice to make a comment, but really meaningfully get involved in congresses and medical research. The role of patient advocates and patient advocacy organisations as essential partners is fundamental in making sure that we move forward in an efficient way.
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17 March 2022. EVENTS, Raising Awareness

Register – Coalition Connection 3: Sustaining Patient Advocacy Post-Covid – March 29

The third Global Cancer Coalitions Network event will tackle post pandemic challenges from the perspective of patient advocacy organisations.

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Dont go red. Go to a doctor. Bladder Cancer Awareness Month 2022 Theme
11 March 2022. NEWS, Raising Awareness

Theme announced for Bladder Cancer Awareness Month 2022

This May, we will say “Don’t Go Red. Go To a Doctor” as we launch the new campaign to raise bladder cancer awareness around the world.

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8 March 2022. Building Community, EVENTS, Raising Awareness

International Women’s Day – how do we #BreakTheBias?

On the occasion of International Women’s Day, the World Bladder Cancer Patient Coalitionhighlights the biases and challenges that women face in bladder cancer care

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1 March 2022.

Newsletter

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1 March 2022. Engaging in Advocacy, NEWS

WBCPC President Dr Lydia Makaroff joins the EAU Patient Office Board

WBCPC is proud to announce that our President has joined the newly established EAU Patient Office Board. Its mission is to ensure that patients remain at the centre of all activities and decisions.

I am honoured to be invited to join the European Association of Urology Patient Office as a Board Member. The European Association of Urology has made great strides to more actively involve patient representatives in their work. My main focus within the Patient Office Board will be to foster collaborations between the Patient Office and the European Patient Advisory Group, and to ensure that patients remain at the centre of all activities and decisions.
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28 February 2022. Building Community, EVENTS, Raising Awareness

Together united to achieve greater equity – Rare Disease Day!

For Rare Disease Day, WBCPC supports equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

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23 February 2022. Engaging in Advocacy, NEWS, Raising Awareness

All.Can launches “Building efficiency in cancer care” policy blueprint

All.Can International launches its new policy blueprint which offers a common and broadly applicable framework to support collaborative policy action to improve efficiency in cancer care. 

Organisational frameworks, data systems, policies and incentives should be aligned towards efficient care, with appropriate resources dedicated to building efficiency in view of the burden and impact of cancer on people affected by cancer and the society.
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21 February 2022. Building Community, NEWS

Now available in Arabic: Start-up guide for bladder cancer groups

The latest edition of the Start-up lunches Arabic, in addition to English, French, Spanish and Portuguese language versions already available.

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18 February 2022. Building Community, NEWS, Raising Awareness

Advice from #BladderCancerForum – our new video series

Hear from CEO of Campaigning For Cancer (South Africa), Lauren Pretorius, about the fundamental role that patient advocates have in improving bladder cancer patient care around the globe.  

We need to create any opportunity to engage with patients around the world. There are different kinds of patients, and those patients are nervous, scared and out of their depth. We need to create places and efforts that help them tell their story.
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