Bladder cancer data
Bladder cancer is the 10th most commonly diagnosed cancer in the world. It can affect anyone, at any age. Bladder cancer data is important to better understand the disease and its impact on lives across the world. It will allow us and our member organisations to advocate more successfully to improve the lives of people affected by bladder cancer and improve the outcomes for bladder cancer patients.
We do not currently collect bladder cancer data as an organisation. However, we have reviewed recent bladder cancer data about the incidence and impact of this disease in several countries, which is available in our Bladder Cancer Digital World Tour. We will be updating these figures as the latest information comes out.
Additionally, we have created an infographic encompassing global bladder cancer figures about incidence, mortality and the main symptoms and causes.
Capturing bladder cancer patient perspectives
Gathering patient experiences is also important to better understand the direct impact that this disease has. The Bladder Cancer Patient & Carer Survey Report, recently published by the World Bladder Cancer Patient Coalition, marks a significant milestone in understanding the experiences of bladder cancer patients and carers.
This extensive multi-year, multi-national research project, conducted in collaboration with global experts and patient organisations, is one of the few studies that delve into the lived experiences of those affected by bladder cancer. With 1,198 responses from 45 countries and 65 questions, the survey offers a comprehensive view of the entire patient experience, including the impact of the COVID-19 pandemic. The report is considered the broadest international analysis of bladder cancer patient experiences, covering a wide range of topics from disease awareness to life after cancer.
Explore the Survey report here.
Key bladder cancer data
Awareness and diagnosis
According to our study, nearly all bladder cancer patients had noticeable signs and symptoms of bladder cancer, but prior awareness of bladder cancer and bladder cancer symptoms was low. Over half of respondents did not know the signs and symptoms of bladder cancer before their diagnosis, and almost two-thirds did not know visible blood in urine was a symptom of bladder cancer, even though it was the most common one. When compared to other common cancer types, only a third understood the signs and symptoms of bladder cancer before diagnosis.
Awareness and diagnosis
Whilst most respondents visited their doctor immediately, or within a month after noticing signs and symptoms of bladder cancer, nearly a third waited longer than a month. The inconsistent nature of symptoms, lack of pain, and poor understanding of bladder cancer can contribute to delays in seeking help and delays to an eventual diagnosis. Haematuria, a key symptom, can be deceptive due to its painless and inconsistent nature.
Nearly half of the patients who underwent the bladder removal surgery, were not counselled before radical cystectomy on the possible sexual side effects. Notably, males were more than three times more likely to ‘definitely’ be counselled regarding the sexual side effects of radical cystectomy (36%), compared to females (11%)