Engaging in advocacy

Evidence-based advocacy for positive change

We believe that evidence-based advocacy is the best way to move bladder cancer patient experience and care forward in a positive direction. 

As a global organisation, we engage strategic partners and policy makers to ensure bladder cancer is at the top of the global health policy agenda.

How we advocate for better patient care

Our goal is to bring bladder cancer to the top of the global health policy agenda, and we do this by communicating the key challenges faced by the bladder cancer patient community at the policy-level to drive concrete change.

We work to bring attention to the needs of patients throughout the entirety of care – from prevention, to diagnosis, access to information, support, treatment and care, quality of life and survivorship. We also advocate for better research to improve our  knowledge and understanding of bladder cancer.

We work together with our members and affiliates to support national advocacy efforts, develop key messages, and exchange experiences on what works well, and what doesn’t. We also help to build the capacity of our members to advocate for access to the best possible patient care, support and information.

Finally, we partner with a range of different organisations and stakeholders – including patient organisations, healthcare professionals, the private sector, academics and researchers, policymakers and other global patient organisations – to maximise the impact that we can have in our advocacy activities.

Treatment, research and support for bladder cancer patients varies widely across the globe and even within countries and it’s critical that we mobilise bladder cancer patient organisations across the world to help ensure the best possible outcomes for patients, by communicating patient needs with key policymakers and advocating for positive change.
Ken Bagshaw

President of the World Bladder Cancer Patient Coalition and Board Member of Bladder Cancer Canada (BCC)

Resources

Joint statement on impact of COVID-19 Download
Joint report: The impact of COVID-19 on cancer patient organisations Download
Poster: Cancer care during COVID-19 Download

Other focus areas

Related news & events

COVID-19: Impact on cancer patient organisations – Report

New report highlights the challenges faced by charitable organisations who provide a wide range of services for cancer patients and their community, including funding of research and health professional education.

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Bladder cancer patient studies wanted for major urology congress

Do you have compelling patient research insights in bladder cancer diagnostics, treatments or follow-ups? Your work deserves a wider audience – submit it for the EAU21 Patient Poster Track.

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COVID-19 Vaccinations and patients with cancer – An ESMO Call to action

The World Bladder Cancer Patient Coalition endorses the ESMO Call to Action on COVID-19 vaccinations and patients with cancer.

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