Engaging in advocacy

Evidence-based advocacy for positive change

We believe that evidence-based advocacy is the best way to move bladder cancer patient experience and care forward in a positive direction. 

As a global organisation, we engage strategic partners and policy makers to ensure bladder cancer is at the top of the global health policy agenda.

How we advocate for better patient care

Our goal is to bring bladder cancer to the top of the global health policy agenda, and we do this by communicating the key challenges faced by the bladder cancer patient community at the policy-level to drive concrete change.

We work to bring attention to the needs of patients throughout the entirety of care – from prevention, to diagnosis, access to information, support, treatment and care, quality of life and survivorship. We also advocate for better research to improve our  knowledge and understanding of bladder cancer.

We work together with our members and affiliates to support national advocacy efforts, develop key messages, and exchange experiences on what works well, and what doesn’t. We also help to build the capacity of our members to advocate for access to the best possible patient care, support and information.

Finally, we partner with a range of different organisations and stakeholders – including patient organisations, healthcare professionals, the private sector, academics and researchers, policymakers and other global patient organisations – to maximise the impact that we can have in our advocacy activities.

Treatment, research and support for bladder cancer patients varies widely across the globe and even within countries and it’s critical that we mobilise bladder cancer patient organisations across the world to help ensure the best possible outcomes for patients, by communicating patient needs with key policymakers and advocating for positive change.
Ken Bagshaw

Founding President of the World Bladder Cancer Patient Coalition and Board Member of Bladder Cancer Canada (BCC)


White Paper on Bladder Cancer Download
White Paper Infographic Download
Policy recommendations: challenge of urinary problems in people living with prostate and bladder cancer Download
Bladder cancer stigma infographic Download
Bladder cancer stigma advocacy toolkit Download
Joint statement on impact of COVID-19 Download
GCCN report: The impact of COVID-19 on cancer patient organisations Download
Poster: Cancer care during COVID-19 Download
COVID-19 Vaccinations and patients with cancer – An ESMO Call to action Download
Joint letter on COVID-19 and cancer Download

Other focus areas

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Global Bladder Cancer Patient Survey results presented at SIU Congress

The poster showcases key elements of bladder cancer experience with care and the importance of awareness raising and peer support

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