World Bladder Cancer Patient Forum 2025: Explore the agenda and join us in Brussels

The World Bladder Cancer Patient Forum returns in 2025, and this year we are bringing the global bladder cancer community together in Brussels for a two-day event. On October 13, we host Advocates Day, a dedicated space for our member organisations to connect, collaborate, and shape the future of the coalition. On October 14, Public Day, patients, carers, advocates, healthcare professionals, and policymakers will gather for a full day of conversations that matter,

WBCPC Annual Report 2024

We have released our 2024 Annual Report, offering a comprehensive look into a year of global expansion, deepening impact, and powerful patient-led advocacy. From the launch of a new community platform to the most engaging awareness campaign to date, the coalition’s work continues to elevate the voices of people affected by bladder cancer worldwide.

2024 at a glance:

  • 62 countries took part in Bladder Cancer Awareness Month (BCAM)
  • 12+ million people reached,

Recognising symptoms of bladder cancer: New patient factsheet available

We launched our latest resource in the WBCPC Factsheet Series: “Recognising the Symptoms of Bladder Cancer”. This factsheet is designed to help people better understand the early signs of bladder cancer, encouraging timely consultation with healthcare professionals.

Bladder cancer is one of the most common cancers worldwide, yet awareness of its symptoms remains low. Early detection significantly improves treatment outcomes, and this resource was developed to empower everyone, including patients,

Facing bladder cancer: Rebekka shares the story of her father, Peter Noll

Bladder cancer affects nearly 1.9 million people worldwide, each with their own story. Today, we share the perspective of Rebekka, whose father, the Swiss author and professor Peter Noll, was diagnosed with bladder cancer in 1981. What followed was a deeply personal journey marked by choice, dignity, and one daughter’s quiet support.

Peter was 55 years old when he received his diagnosis. A respected legal scholar and public figure in Switzerland,

Introducing WBCPC Scientific Advisory Board

The World Bladder Cancer Patient Coalition is proud to announce the launch of its first Scientific Advisory Board (SAB) a significant step forward in our efforts to ensure all our work is grounded in the latest medicaland scientific expertise and the real needs of people affected by bladder cancer.

Comprised of leading urologists, oncologists, radiotherapists, researchers, pathologists, nurses, and other medical professionals from around the world, the SAB will provide independent advice to the WBCPC Board of Directors and senior leadership.

Advancing person-centred care in bladder cancer – new Medscape course now available

We are pleased to announce the release of a new educational course developed in collaboration with Medscape, now available to healthcare professionals globally.

Titled “Personalized Care is Pivotal: Navigating the Evolving Landscape for Advanced Urothelial Carcinoma” this free, CME-accredited course is designed to support oncologists, urologists, nurses, and allied healthcare professionals in delivering more individualised and person-centred care for people living with advanced bladder cancer.

The programme features a 45-minute interactive learning activity,

WBCPC appoints new President as the Board expands

The World Bladder Cancer Patient Coalition is thrilled to announce the appointment of Lori Funk-Cirefice as its new President, and the election of Alessandro Boni from Italy and Fiorella Gagliardi from Argentina as new members of the Board of Directors, all serving a term from 2025 to 2028.

Lori Funk-Cirefice, based in France, has been involved with the Coalition since its founding in 2019. She is the President of Cancer Vessie France,

World Continence Week 2025

As a global initiative, World Continence Week aims to raise awareness of bladder and bowel issues, chronic pelvic pain, and other conditions that impact the lives of patients and carers.

Urinary incontinence impacts people affected by bladder cancer. Troublesome urinary symptoms such as burning and irritation when peeing or incontinence issues after treatment are common side-effects. Urinary incontinence is also called loss of bladder control. It is an involuntary loss of urine or the inability to control urination.

WBCPC joins call to protect patient voting rights in EMA committees

Earlier this month, the World Bladder Cancer Patient Coalition co-signed a joint statement led by EURORDIS and the European Patients’ Forum (EPF), calling for meaningful patient involvement and the protection of voting rights in European Medicines Agency (EMA) committees.

This united action comes at a key moment as EU institutions negotiate the final shape of the new pharmaceutical legislation. The statement highlights the need to preserve and strengthen patient representation,

Dr Lydia Makaroff steps down as WBCPC President

Today, we mark the end of an important chapter as Dr Lydia Makaroff steps down after four years of dedicated service as President. She was elected to the role in 2021, succeeding the Founding President Ken Bagshaw, and has played a key role in strengthening the Coalition and helping it grow internationally.

Lydia has been part of the Coalition since it was founded in 2019. Before her appointment as President, she served as Vice-President and Treasurer.