27 January 2025. Engaging in Advocacy, NEWS

IBCG Launches Centre for Patient-Centric Care Initiatives

WBCPC joins the advisory committee of the newly established centre by the International Bladder Cancer Group.

This initiative highlights the critical importance of placing patients and their families at the centre of bladder cancer care. As a global coalition, we are proud to bring the voices and experiences of our community to this effort, helping to shape meaningful strategies that will improve care and outcomes for all people affected by bladder cancer around the world.
Learn more
23 January 2025. Building Community, NEWS

The journey of Uro H Advisor in supporting bladder cancer patients

Explore Uro H Advisor, a platform by Associazione PaLiNUro that helps bladder cancer patients in Italy find trusted hospital reviews and make confident care decisions.

We’re excited to see the reviews grow because each one helps one more patient to feel supported and informed. The more voices we collect, the stronger this tool becomes.
Learn more
18 January 2025. Building Community, NEWS

How CANVES became Spain’s first bladder cancer support group

Discover how CANVES, Spain’s first bladder cancer support group, turned their vision into reality with the guidance of the World Bladder Cancer Patient Coalition’s Start-Up Guide.

When I was first diagnosed with bladder cancer, I felt isolated and overwhelmed. There was so little information available, and I soon realised that there wasn’t a dedicated support network for patients like me in Spain. That’s when the idea for CANVES was born - out of a need to connect patients, offer support, and raise awareness about bladder cancer.
Learn more
14 January 2025. Building Community, NEWS

Start-up guide for bladder cancer patient groups – January 2025 update

Explore our updated Start-Up Guide, now enhanced with the latest insights, practical tools, and success stories to better support bladder cancer patient groups. This new edition builds on the original guide to help you make an even greater impact.

Learn more
3 January 2025. NEWS, Raising Awareness

2025 A New Year, A Shared Vision

Find out how the World Bladder Cancer Patient Coalition is starting 2025 with a shared vision to build stronger communities, raise awareness, and drive advocacy for bladder cancer patients worldwide.

Learn more
18 December 2024. Building Community, NEWS

Kickstart your career: trainee opportunity in global health advocacy

Apply by January 30, 2025, to join the World Bladder Cancer Patient Coalition as a Programme Support Trainee and contribute to global health advocacy.

Learn more
18 December 2024. NEWS, Raising Awareness

Key questions to ask your doctor or nurse: New factsheet now available

Download the factsheet to guide conversations with your doctor or nurse about bladder cancer diagnosis and prognosis.

Learn more
11 December 2024. EVENTS, Raising Awareness

Strengthening the patient voice in HTA

An introduction to Health Technology Assessment at World Bladder Cancer Patient Forum provided a place to hear from concrete case studies from our community.

Health Technology Assessment is about so much more than numbers. It’s about ensuring healthcare decisions reflect the realities and needs of patients.
Learn more
10 December 2024. Building Community, NEWS

Building effective partnerships with healthcare professionals

A panel discussion at the World Bladder Cancer Patient Forum 2024 discuss different ways how patient advocates can effectively engage with healthcare professionals.

 Doctors are just people—approachable and often eager to help. When you show genuine interest in collaboration, it’s amazing what doors open and what partnerships flourish.
Learn more
9 December 2024. Engaging in Advocacy, EVENTS

Policy as a tool to advocate for bladder cancer patient needs

Workshop led by Eva María Ruiz de Castilla at the World Bladder Cancer Patient Forum explored how policy advocacy can shape better healthcare outcomes for bladder cancer patients.

Learn more