Newly established CANVES joins WBCPC community

We are thrilled to announce that CANVES (Alianza por el cáncer de vejiga en España) has officially joined the World Bladder Cancer Patient Coalition (WBCPC). As a new member and as a newly established organisation, CANVES represents the Spanish bladder cancer patient community and brings an important addition to our global network.

Founded in 2024, CANVES emerged in response to the lack of dedicated patient support and information for bladder cancer patients and carers in Spain.

Sharing 5 unique stories of women with bladder cancer

We have recently launched a new campaign, illuminating the experiences of women affected by bladder cancer. The five-part video series follows five women in five different corners of the world who share their very personal experiences with bladder cancer.

Highlighting the fact that one in four bladder cancer patients are women, this campaign emphasises how their stories often go unheard. Women face unique challenges throughout their care journey, with symptoms frequently misattributed to other causes,

Understanding TURBT: new patient factsheet available

We are delighted to launch a new factsheet titled “Understanding TURBT”, the second of our series of Factsheets we are developing. This resource is designed to help patients, carers, understand the Transurethral Resection of Bladder Tumour (TURBT), a crucial procedure in diagnosing and treating bladder cancer.

The factsheet is developed as a decision-aid tool to help patients newly diagnosed with bladder cancer to have a conversation with their treating doctor.

WBCPC Annual Report 2023

We are excited to announce the release of the World Bladder Cancer Patient Coalition Annual Report 2023, marking our fifth anniversary as a global coalition. This report highlights our achievements, milestones, and the positive impact we’ve made over the past year and reflect on the past five years.

Since our founding in 2019, we have now united 15 patient organisations across six continents, working together to improve the lives of those affected by bladder cancer worldwide.

WBCPC Presents at the SIU Congress in New Delhi

The World Bladder Cancer Patient Coalition team joined the 44th Annual SIU Congress – a leading global event organised by Société Internationale d’Urologie convening urologists worldwide. This marks the fourth consecutive year WBCPC was invited to join the Congress.

This year, the second WBCPC Abstract Poster (see 2023 SIU Poster here) was accepted for presentation at the Congress. Our Executive Director Alex Filicevas is presenting the Poster Divergent Experiences of Bladder Cancer Patients: A Focus on Advanced and Metastatic Disease Stages.

World Bladder Cancer Patient Forum 2024 – Strengthening bladder cancer advocacy and collaboration

The second day of the World Bladder Cancer Patient Forum 2024, held on October 2 in Punta Cana, Dominican Republic, built on the success of the previous day, focusing on the importance of collaboration. It was a day of valuable discussions, global insights, and shared strategies aimed at improving bladder cancer care and support.

By bringing together patient advocates and our member organisations from across the globe, the day highlighted the need for collective action to raise awareness and improve patient outcomes.

World Bladder Cancer Patient Forum 2024 – bringing bladder cancer advocacy to the Forefront

The World Bladder Cancer Patient Forum 2024 took place in Punta Cana, Dominican Republic, starting with an engaging first day on October 1st. This year’s Forum brought together bladder cancer patient advocates, healthcare professionals, and experts from many different countries to discuss key topics and exchange knowledge.

Focusing on patient advocacy, healthcare collaboration, and the latest research, the Forum’s first day facilitated important conversations aimed at strengthening support people affected by bladder cancer around the world.

Understanding Bladder Cancer: new factsheet available

We are delighted to launch the new Bladder Cancer Factsheet titled “What is Bladder Cancer?” which is the first of our series of Factsheets we are developing. This resource is designed to help patients, caregivers, and the general public understand bladder cancer, its types, and available treatments.

The factsheet is intended as a decision-aid tool to help patients newly diagnosed with bladder cancer to have a conversation with their treating doctor.

World Mental Health Day 2024: It is Time to Prioritise Mental Health in the Workplace

The World Health Organisation recognizes World Mental Health Day every year on October 10th. For 2024, the theme, chosen by the World Federation for Mental Health, is “It is Time to Prioritize Mental Health in the Workplace”. This year’s theme highlights the importance of fostering environments where mental health is prioritised, reflecting the pressing need for action and opportunity worldwide.

Mental health issues such as depression and anxiety significantly impact workplaces globally,

European Carers Day 2024: Advocating for rights, recognition, and support

European Carers Day is an initiative from EuroCarers, celebrated annually on October 6th, which shines a light on the millions of unpaid carers across Europe who dedicate their time and energy to supporting loved ones in need. This year’s theme highlights the important role carers play in society, advocating for their recognition, rights, and the support they deserve. Carers often face significant challenges, including financial strain, social isolation, and emotional burnout,