News & Events
Addressing gaps in support for women with bladder cancer: closing a gap that starts at diagnosis
On Public Day of the World Bladder Cancer Patient Forum 2026, the closing session asked why women are still diagnosed later than men, and what patient organisations, nurses and surgeons can do about it.
Capturing lived experience with bladder cancer: three journeys, one message
On Public Day of the World Bladder Cancer Patient Forum 2026, three people living with bladder cancer, joining from Singapore, Japan and Senegal, shared what the diagnosis took from them and what they built afterwards.
Charting the path to Shared Decision-Making: from patient as passenger to patient as partner
On Public Day of the World Bladder Cancer Patient Forum 2026, six speakers from six very different vantage points asked what it would take to make shared decision-making real, from the consultation room to the health system around it.
Role of carers in the healthcare system: the person sitting beside the patient
On Public Day of the World Bladder Cancer Patient Forum 2026, a patient and his carer described what really happens after a bladder cancer diagnosis, including why two people in the consultation room hear two very different things.
WBCPC and our global impact: what the Coalition has built
On Public Day of the World Bladder Cancer Patient Forum 2026, Executive Director Alex Filicevas set out what the Coalition and its members have built together.
Designing patient centric clinical trials: who is in the room when a protocol is written
On Public Day of the World Bladder Cancer Patient Forum 2026, a panel of patients, clinicians and industry unpacked how clinical trial protocols are written, why they so often ask too much of patients, and what changes when advocates are in the room from the start.
Spot the Drop Kenya: from awareness to a community
At the World Bladder Cancer Patient Forum 2026 in Hong Kong, our Bladder Cancer Awareness Month showcase heard how Kenya’s KENCO turned a small BCAM grant and its existing networks into a national conversation, reaching over 100,000 people in a single month.
Latest developments in bladder cancer research: what it means for patients
On Public Day of the World Bladder Cancer Patient Forum 2026, two of the world’s leading bladder cancer surgeons used the session “Latest developments in bladder cancer research” to explain where treatment is heading, why some bladders may no longer need to be removed, and what thirty years of patients have taught them.
Bladder cancer care realities: perspectives from Japan and India
On Public Day of the World Bladder Cancer Patient Forum 2026 in Hong Kong, the session “Bladder cancer care realities around the world” brought together advocates from Japan and India to share what patients in their countries are really up against, and what they are doing about it.
Shared evidence & impact: Shaping our next patient and carer survey
Closing Advocates Day at the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members ran a World Café workshop to help shape WBCPC’s next Global Patient and Carer Survey, and surfaced the questions patients most need answered.
