21 September 2026. Engaging in Advocacy, EVENTS

Shared evidence & impact: Shaping our next patient and carer survey

Closing Advocates Day at the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members ran a World Café workshop to help shape WBCPC’s next Global Patient and Carer Survey, and surfaced the questions patients most need answered.

Learn more
21 September 2026. Engaging in Advocacy, EVENTS

Conflict management within an organisation

At the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members explored where conflict comes from in a patient organisation, and how to handle it in a workshop led by Eric Sampson, Partner at Dramatic Difference.

Learn more
21 September 2026. Engaging in Advocacy, EVENTS

Building collaboration and partnerships

At the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members joined a workshop on turning the right partnerships into real impact, led by Adam Lynch of BEAT Bladder Cancer Australia and Mădălina Iamandei of All.Can International.

Learn more
21 September 2026. Building Community, EVENTS

What advocates can learn from other patient communities

At the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members heard from Richard Vines, co-founder of Rare Cancers Australia, on how a charity built at his kitchen table changed national cancer policy, and what any patient organisation can learn from how it did it.

Learn more
21 September 2026. Engaging in Advocacy, EVENTS

Workshop: Growing a small organisation into a national leader

At the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members learned how a Facebook support group in Taiwan grew into a seat on the national health insurance committee, and what any small organisation can borrow from that journey.

Learn more
21 September 2026. Engaging in Advocacy, EVENTS

Workshop: Health Technology Assessment for patient advocates

At the World Bladder Cancer Patient Forum 2026, our members took part in a hands-on workshop on Health Technology Assessment, using a fictional drug decision to learn what makes patient input truly count.

Learn more
21 September 2026. Building Community, EVENTS

WBCPC: supporting our member community

At the World Bladder Cancer Patient Forum 2026, WBCPC’s President Lori Cirefice and Executive Director Alex Filicevas discuss what it really takes to support our member community and how WBCPC is closing the gap between global resources and local impact.

Learn more
21 September 2026. EVENTS, Raising Awareness

Using AI without losing the patient voice

At the World Bladder Cancer Patient Forum 2026, a workshop on AI tools for patient advocates set out where artificial intelligence genuinely helps a small team, where it must be kept out, and why the quality of the output is only ever the quality of the brief.

Learn more
21 September 2026. EVENTS, Raising Awareness

Learning from each other: four member projects that worked

At the World Bladder Cancer Patient Forum 2026, four member organisations shared the projects that made a real difference at home, from Australia and Canada to Spain and Malawi.

Learn more
21 September 2026. Building Community, EVENTS

Opening the Forum in Hong Kong: honesty, partnership and patient voices

Our Forum opened in Hong Kong for the first time, with a keynote from President Lori Funk Cirefice and a welcome from Dr Ka-On Lam of the Hong Kong Anti-Cancer Society.

Learn more