News & Events
WBCPC and our global impact: what the Coalition has built
On Public Day of the World Bladder Cancer Patient Forum 2026, Executive Director Alex Filicevas set out what the Coalition and its members have built together.
Designing patient centric clinical trials: who is in the room when a protocol is written
On Public Day of the World Bladder Cancer Patient Forum 2026, a panel of patients, clinicians and industry unpacked how clinical trial protocols are written, why they so often ask too much of patients, and what changes when advocates are in the room from the start.
Spot the Drop Kenya: from awareness to a community
At the World Bladder Cancer Patient Forum 2026 in Hong Kong, our Bladder Cancer Awareness Month showcase heard how Kenya’s KENCO turned a small BCAM grant and its existing networks into a national conversation, reaching over 100,000 people in a single month.
Latest developments in bladder cancer research: what it means for patients
On Public Day of the World Bladder Cancer Patient Forum 2026 in Hong Kong, two of the world’s leading bladder cancer surgeons used the session “Latest developments in bladder cancer research” to explain where treatment is heading, why some bladders may no longer need to be removed, and what thirty years of patients have taught them.
Bladder cancer care realities: perspectives from Japan and India
On Public Day of the World Bladder Cancer Patient Forum 2026 in Hong Kong, the session “Bladder cancer care realities around the world” brought together advocates from Japan and India to share what patients in their countries are really up against, and what they are doing about it.
Shared evidence & impact: Shaping our next patient and carer survey
Closing Advocates Day at the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members ran a World Café workshop to help shape WBCPC’s next Global Patient and Carer Survey, and surfaced the questions patients most need answered.
Conflict management within an organisation
At the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members explored where conflict comes from in a patient organisation, and how to handle it in a workshop led by Eric Sampson, Partner at Dramatic Difference.
Building collaboration and partnerships
At the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members joined a workshop on turning the right partnerships into real impact, led by Adam Lynch of BEAT Bladder Cancer Australia and Mădălina Iamandei of All.Can International.
What advocates can learn from other patient communities
At the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members heard from Richard Vines, co-founder of Rare Cancers Australia, on how a charity built at his kitchen table changed national cancer policy, and what any patient organisation can learn from how it did it.
Workshop: Growing a small organisation into a national leader
At the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members learned how a Facebook support group in Taiwan grew into a seat on the national health insurance committee, and what any small organisation can borrow from that journey.



