25 September 2026. Engaging in Advocacy, EVENTS

WBCPC calls for shared decision-making to become the standard at the World Cancer Congress 2026

At the World Cancer Congress 2026 in Hong Kong, our Executive Director joined partners from the International Kidney Cancer Coalition and Lymphoma Coalition to share what patients are telling us about shared decision-making in cancer care.

“ Shared decision-making is not only about presenting options. It means an open conversation about the consequences, so people can decide in line with their own values and priorities. Nobody should have to sign a consent form for a decision they were never part of.
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25 September 2026. Engaging in Advocacy, EVENTS

WBCPC presents GCCN poster at the World Cancer Congress 2026 in Hong Kong

Our Executive Director presented new Global Cancer Coalitions Network (GCCN) research at the World Cancer Congress 2026 in Hong Kong, showing that five years after COVID-19, cancer patient organisations face rising demand while their income stands still.

“ Five years after the pandemic began, patient organisations are still under strain, and patients feel it first. The people are there, and they are ready to help. What is missing is the money to meet demand. Recovery cannot be planned without us.
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24 September 2026. Engaging in Advocacy, EVENTS

WBCPC presents BCLEAR poster at the World Cancer Congress 2026 in Hong Kong

Our Executive Director presented a BCLEAR scoping review on bladder cancer education materials at the World Cancer Congress 2026 in Hong Kong.

“ Bladder cancer health literacy is low, and lowest in lower-income countries. It makes prevention harder, it makes it harder to spot symptoms early, and it leaves people out of decisions about their own treatment. Good education materials can help with all three.
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22 September 2026. EVENTS, Raising Awareness

Addressing gaps in support for women with bladder cancer: closing a gap that starts at diagnosis

On Public Day of the World Bladder Cancer Patient Forum 2026, the closing session asked why women are still diagnosed later than men, and what patient organisations, nurses and surgeons can do about it.

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22 September 2026. EVENTS, Raising Awareness

Capturing lived experience with bladder cancer: three journeys, one message

On Public Day of the World Bladder Cancer Patient Forum 2026, three people living with bladder cancer, joining from Singapore, Japan and Senegal, shared what the diagnosis took from them and what they built afterwards.

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22 September 2026. Engaging in Advocacy, EVENTS

Charting the path to Shared Decision-Making: from patient as passenger to patient as partner

On Public Day of the World Bladder Cancer Patient Forum 2026, six speakers from six very different vantage points asked what it would take to make shared decision-making real, from the consultation room to the health system around it.

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22 September 2026. EVENTS, Raising Awareness

Role of carers in the healthcare system: the person sitting beside the patient

On Public Day of the World Bladder Cancer Patient Forum 2026, a patient and his carer described what really happens after a bladder cancer diagnosis, including why two people in the consultation room hear two very different things.

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22 September 2026. Building Community, EVENTS

WBCPC and our global impact: what the Coalition has built

On Public Day of the World Bladder Cancer Patient Forum 2026, Executive Director Alex Filicevas set out what the Coalition and its members have built together.

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22 September 2026. Engaging in Advocacy, EVENTS

Designing patient centric clinical trials: who is in the room when a protocol is written

On Public Day of the World Bladder Cancer Patient Forum 2026, a panel of patients, clinicians and industry unpacked how clinical trial protocols are written, why they so often ask too much of patients, and what changes when advocates are in the room from the start.

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22 September 2026. EVENTS, Raising Awareness

Spot the Drop Kenya: from awareness to a community

At the World Bladder Cancer Patient Forum 2026 in Hong Kong, our Bladder Cancer Awareness Month showcase heard how Kenya’s KENCO turned a small BCAM grant and its existing networks into a national conversation, reaching over 100,000 people in a single month.

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