1 April 2026. Engaging in Advocacy, EVENTS

Making patient experience count: the role of patient-reported outcomes in cancer trials

At CDDF Workshop 2026, the importance of better designing patient-reported outcomes to influence cancer research and treatment decisions was highlighted.

If we want patient-reported outcomes to inform decisions, they need to be embedded early, co-created with patients, and aligned with what decision-makers actually need. Otherwise, we will continue collecting patient experience without it influencing outcomes.
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1 April 2026. NEWS, Raising Awareness

Spanish versions of bladder cancer treatment factsheets now available

Two key bladder cancer factsheets on treatment are now available in Spanish, helping improve access to clear, patient-friendly information.

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26 March 2026. NEWS, Raising Awareness

Bladder Cancer Awareness Month 2026 Toolkit now available

The Bladder Cancer Awareness Month 2026 campaign toolkit is now available, providing resources and guidance to support global awareness and encourage earlier diagnosis.

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20 March 2026. Building Community, NEWS

Empowering patient groups: new online community guide released

We are excited to launch a concise guide that helps patient groups create safe and supportive online communities.

We have been working to bring the community together and empower bladder cancer patient voices as we raise awareness worldwide. This guide is another step towards that goal, helping patient organisations create spaces where people can connect, feel understood and find support.
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18 March 2026.

WBCPC co-signs Call to Action on early cancer care

The World Bladder Cancer Patient Coalition joined organisations across the cancer community in co-signing Mission Early’s Call to Action for Better Early Cancer Care, highlighted during an event at the European Parliament on March 17, 2026.

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16 March 2026. EVENTS, Raising Awareness

EAU26 session highlights the need to close diagnostic and care gaps for women with bladder cancer

At the European Association of Urology Congress 2026, a session explored why women with bladder cancer are often diagnosed later and experience worse outcomes, highlighting the need for greater awareness, improved education and gender-sensitive approaches to care.

Bladder cancer may be more common in men, but women are more likely to suffer worse outcomes. Closing this gap requires earlier recognition of symptoms, better education for healthcare professionals and stronger awareness of bladder cancer in women.
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16 March 2026. Engaging in Advocacy, EVENTS

EAU26 session explores barriers to discussing urinary symptoms linked to bladder cancer

At the European Association of Urology Congress 2026, we hosted a session examining why some people delay seeking medical care for urinary symptoms and how awareness and communication can support earlier diagnosis of bladder cancer.

The barrier often occurs before the healthcare system is even involved. People first interpret their symptoms and decide whether they are serious enough to warrant consultation. Understanding these behaviours can help us design better awareness efforts that encourage people to seek advice earlier.
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15 March 2026. Engaging in Advocacy, EVENTS

BCLEAR at EAU26: Strengthening health literacy in bladder cancer across Europe

Today at the European Association of Urology Congress 2026, we presented the BCLEAR project, highlighting how improved health literacy and patient education can support earlier diagnosis and better decision-making for people affected by bladder cancer.

BCLEAR focuses on increasing awareness of bladder cancer, strengthening health literacy among the general population and supporting patients and healthcare professionals in shared decision-making throughout the care pathway.
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14 March 2026. Engaging in Advocacy, EVENTS

EAU26 session highlights urinary incontinence in bladder cancer and launches new Urge to Act policy report

At EAU26, a session explored urinary incontinence as a comorbidity affecting people with bladder cancer and marked the launch of a new Urge to Act report calling for greater attention to continence health in policy and care.

Bladder cancer involves very private bodily functions: urination, continence and sexuality. Because of that, many patients struggle to speak about the issues that affect their lives the most.
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13 March 2026. Engaging in Advocacy, EVENTS

BCLEAR at EAU26: WBCPC highlights the importance of shared decision-making in bladder cancer care

At EAU26, WBCPC contributed to the BCLEAR session on shared decision-making, sharing global patient survey insights and highlighting the importance of clear communication and patient involvement in bladder cancer care.

Shared decision making is not only about presenting treatment options. It also requires open discussion about the consequences of those options, so that patients can make decisions aligned with their values and priorities.
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