22 September 2026. Engaging in Advocacy, EVENTS

Latest developments in bladder cancer research: what it means for patients

On Public Day of the World Bladder Cancer Patient Forum 2026 in Hong Kong, two of the world’s leading bladder cancer surgeons used the session “Latest developments in bladder cancer research” to explain where treatment is heading, why some bladders may no longer need to be removed, and what thirty years of patients have taught them.

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22 September 2026. EVENTS, Raising Awareness

Bladder cancer care realities: perspectives from Japan and India

On Public Day of the World Bladder Cancer Patient Forum 2026 in Hong Kong, the session “Bladder cancer care realities around the world” brought together advocates from Japan and India to share what patients in their countries are really up against, and what they are doing about it.

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21 September 2026. Engaging in Advocacy, EVENTS

Shared evidence & impact: Shaping our next patient and carer survey

Closing Advocates Day at the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members ran a World Café workshop to help shape WBCPC’s next Global Patient and Carer Survey, and surfaced the questions patients most need answered.

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21 September 2026. Engaging in Advocacy, EVENTS

Conflict management within an organisation

At the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members explored where conflict comes from in a patient organisation, and how to handle it in a workshop led by Eric Sampson, Partner at Dramatic Difference.

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21 September 2026. Engaging in Advocacy, EVENTS

Building collaboration and partnerships

At the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members joined a workshop on turning the right partnerships into real impact, led by Adam Lynch of BEAT Bladder Cancer Australia and Mădălina Iamandei of All.Can International.

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21 September 2026. Building Community, EVENTS

What advocates can learn from other patient communities

At the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members heard from Richard Vines, co-founder of Rare Cancers Australia, on how a charity built at his kitchen table changed national cancer policy, and what any patient organisation can learn from how it did it.

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21 September 2026. Engaging in Advocacy, EVENTS

Workshop: Growing a small organisation into a national leader

At the World Bladder Cancer Patient Forum 2026, World Bladder Cancer Patient Coalition members learned how a Facebook support group in Taiwan grew into a seat on the national health insurance committee, and what any small organisation can borrow from that journey.

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21 September 2026. Engaging in Advocacy, EVENTS

Workshop: Health Technology Assessment for patient advocates

At the World Bladder Cancer Patient Forum 2026, our members took part in a hands-on workshop on Health Technology Assessment, using a fictional drug decision to learn what makes patient input truly count.

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21 September 2026. Building Community, EVENTS

WBCPC: supporting our member community

At the World Bladder Cancer Patient Forum 2026, WBCPC’s President Lori Cirefice and Executive Director Alex Filicevas discuss what it really takes to support our member community and how WBCPC is closing the gap between global resources and local impact.

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21 September 2026. EVENTS, Raising Awareness

Using AI without losing the patient voice

At the World Bladder Cancer Patient Forum 2026, a workshop on AI tools for patient advocates set out where artificial intelligence genuinely helps a small team, where it must be kept out, and why the quality of the output is only ever the quality of the brief.

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