At the World Bladder Cancer Patient Forum 2024, advocates, healthcare professionals, and patients gathered to discuss issues in bladder cancer care. The session, “Joining Forces to Meet Bladder Cancer Patient Support Needs,” highlighted the importance of patient education, collaboration, and addressing gender-specific challenges.
Dr. Martin Angel opened the discussion by emphasising the importance of holistic support for bladder cancer patients. He highlighted how his team collaborates with radiologists, pathologists, and psychologists to manage side effects and support patients during treatment.
The session, Starting a Bladder Cancer Patient Group from Scratch, at the World Bladder Cancer Patient Forum 2024 brought together Laurent Gemenick, Co-founder of CANVES (Spain), and Dr. Stephanie Demkiw, Co-founder of Bladder Cancer Awareness Australia (Australia). Both speakers shared their own personal journeys starting a patient group and outlined the essential steps to consider when starting bladder cancer organisations in their countries.
Laurent Gemenick began by reflecting on the journey of founding CANVES,
The World Bladder Cancer Patient Forum 2024 kicked-off with a keynote presentation by Dr Mario Fernández, Associate Professor of Urology at Clínica Alemana in Santiago, Chile. He highlighted the growing burden of bladder cancer in Latin America, emphasising the region’s unique challenges, such as environmental risk factors and gaps in healthcare infrastructure.
Bladder cancer cases in Latin America are rising, with over 23,000 new cases reported in 2022,
We have recently launched a new campaign, illuminating the experiences of women affected by bladder cancer. The five-part video series follows five women in five different corners of the world who share their very personal experiences with bladder cancer.
Highlighting the fact that one in four bladder cancer patients are women, this campaign emphasises how their stories often go unheard. Women face unique challenges throughout their care journey, with symptoms frequently misattributed to other causes,
We are delighted to launch a new factsheet titled “Understanding TURBT”, the second of our series of Factsheets we are developing. This resource is designed to help patients, carers, understand the Transurethral Resection of Bladder Tumour (TURBT), a crucial procedure in diagnosing and treating bladder cancer.
The factsheet is developed as a decision-aid tool to help patients newly diagnosed with bladder cancer to have a conversation with their treating doctor.
We are delighted to launch the new Bladder Cancer Factsheet titled “What is Bladder Cancer?” which is the first of our series of Factsheets we are developing. This resource is designed to help patients, caregivers, and the general public understand bladder cancer, its types, and available treatments.
The factsheet is intended as a decision-aid tool to help patients newly diagnosed with bladder cancer to have a conversation with their treating doctor.
The World Health Organisation recognizes World Mental Health Day every year on October 10th. For 2024, the theme, chosen by the World Federation for Mental Health, is “It is Time to Prioritize Mental Health in the Workplace”. This year’s theme highlights the importance of fostering environments where mental health is prioritised, reflecting the pressing need for action and opportunity worldwide.
Mental health issues such as depression and anxiety significantly impact workplaces globally,
European Carers Day is an initiative from EuroCarers, celebrated annually on October 6th, which shines a light on the millions of unpaid carers across Europe who dedicate their time and energy to supporting loved ones in need. This year’s theme highlights the important role carers play in society, advocating for their recognition, rights, and the support they deserve. Carers often face significant challenges, including financial strain, social isolation, and emotional burnout,
Urology Week 2024 is a European initiative by the European Association of Urology (EAU), running from September 23-29, 2024, and focusing on the important issue for our bladder cancer patient community – continence care.
Incontinence affects millions worldwide, including a significant number of people with bladder cancer, and remains a challenging and often stigmatised condition. The EAU campaign aims to break the taboo around incontinence and urges communities to foster open conversations,
Johnstone, a spin cycle enthusiast from Scotland, has been passionately involved in the sport for over 25 years. Diagnosed with bladder cancer in 2019, Johnstone’s commitment to spinning has been a cornerstone of his resilience and recovery.
His first symptom of bladder cancer appeared on January 2019, during a very strenuous spin cycle class when he noticed heavy blood in his urine with clots. As a doctor, he quickly diagnosed himself with bladder cancer and knew what might follow.
