Latest Research in Bladder Cancer

At the World Bladder Cancer Patient Forum 2024, Prof. Joan Palou, Chairman of the Urology Department at Fundació Puigvert in Barcelona, Spain, presented on the latest advances in bladder cancer research. Prof Palou’s Keynote presentation focused on how new treatments, better imaging methods, and innovative bladder preservation approaches are advancing bladder cancer treatment and care.

Prof. Palou began by discussing muscle-invasive bladder cancer (MIBC), explaining that even with aggressive treatments,

Celebrating progress: Reflecting on five years of global advocacy for bladder cancer

At the World Bladder Cancer Patient Forum 2024, a fireside chat style conversation featuring Dr Lydia Makaroff, outgoing President of the World Bladder Cancer Patient Coalition (WBCPC), and Alex Filicevas, Executive Director of WBCPC, provided an opportunity to reflect on the Coalition’s achievements over its first five years. The discussion highlighted the progress made in bladder cancer patient advocacy, awareness, and support, while also considering the road ahead.

The coalition, founded in 2019 with three founding members has grown to include 15 organisations across 12 countries today.

Joining Forces to Support Bladder Cancer Patients

At the World Bladder Cancer Patient Forum 2024, advocates, healthcare professionals, and patients gathered to discuss issues in bladder cancer care. The session, “Joining Forces to Meet Bladder Cancer Patient Support Needs,” highlighted the importance of patient education, collaboration, and addressing gender-specific challenges.

Dr. Martin Angel opened the discussion by emphasising the importance of holistic support for bladder cancer patients. He highlighted how his team collaborates with radiologists, pathologists, and psychologists to manage side effects and support patients during treatment.

Starting a bladder cancer patient group from scratch

The session, Starting a Bladder Cancer Patient Group from Scratch, at the World Bladder Cancer Patient Forum 2024 brought together Laurent Gemenick, Co-founder of CANVES (Spain), and Dr. Stephanie Demkiw, Co-founder of Bladder Cancer Awareness Australia (Australia). Both speakers shared their own personal journeys starting a patient group and outlined the essential steps to consider when starting bladder cancer organisations in their countries.

Laurent Gemenick began by reflecting on the journey of founding CANVES,

Celebrating Carers this International Caregiver Day

On November 26, 2024, the world marks the International Caregiver Day by appreciating the important contributions of carers around the world, especially those supporting people affected by bladder cancer.

Bladder cancer, the 9th most commonly diagnosed cancer globally, affects not only patients but also their families and friends. Carers, often close family members or friends, play an essential role in providing practical assistance and emotional support throughout the cancer journey.

Our Bladder Cancer Patient &

Reconnect with highlights from #BladderCancerForum24 in this video

The World Bladder Cancer Patient Forum 2024, held in Punta Cana, Dominican Republic, brought together bladder cancer patient advocates, healthcare professionals, and experts from across the globe.

The first day featured discussions on patient advocacy, healthcare partnerships, and the latest research, sparking meaningful conversations aimed at strengthening the global support network for people affected by bladder cancer. On the second day, the focus shifted to the power of collective action and global collaboration.

Advocating for patient rights in Latin America

At the World Bladder Cancer Patient Forum 2024, a fireside chat featuring Fiorella Gagliardi, President of VICARE GU organisation in Argentina, and Marie Magenhann Cueto, Community Engagement Coordinator at WBCPC, shed light on the need to improve cancer patient rights in Latin America. The conversation focused on the challenges facing bladder cancer patients in the region and how advocacy efforts can improve care and access to essential resources.

The discussion highlighted the unequal access to healthcare services that many patients in Latin America encounter,

Bladder Cancer in Latin America: A call for action by Dr Mario Fernández at the World Bladder Cancer Patient Forum

The World Bladder Cancer Patient Forum 2024 kicked-off with a keynote presentation by Dr Mario Fernández, Associate Professor of Urology at Clínica Alemana in Santiago, Chile. He highlighted the growing burden of bladder cancer in Latin America, emphasising the region’s unique challenges, such as environmental risk factors and gaps in healthcare infrastructure.

Bladder cancer cases in Latin America are rising, with over 23,000 new cases reported in 2022,

Newly established CANVES joins WBCPC community

We are thrilled to announce that CANVES (Alianza por el cáncer de vejiga en España) has officially joined the World Bladder Cancer Patient Coalition (WBCPC). As a new member and as a newly established organisation, CANVES represents the Spanish bladder cancer patient community and brings an important addition to our global network.

Founded in 2024, CANVES emerged in response to the lack of dedicated patient support and information for bladder cancer patients and carers in Spain.

Sharing 5 unique stories of women with bladder cancer

We have recently launched a new campaign, illuminating the experiences of women affected by bladder cancer. The five-part video series follows five women in five different corners of the world who share their very personal experiences with bladder cancer.

Highlighting the fact that one in four bladder cancer patients are women, this campaign emphasises how their stories often go unheard. Women face unique challenges throughout their care journey, with symptoms frequently misattributed to other causes,